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To: autumnraine

There’s a lot of non-Scientologist that don’t treat seizures with medication.

Anti-seizure medication is really nasty. The first one my daughter was on made her literally crazy. She was having tons of temper tantrums, kicked wholes in our walls, made her start stuttering, made her word finding abilities (speech) worse, and then she slept a ton. We finally found a better medication, but there was a risk that she could have a life-threatening rash with it.

Now, there are warnings of most anti-seizure medications increasing the risks for depression and suicide.

I know plenty of families that choose to work on lifestyle and diet changes to control seizures.


78 posted on 01/02/2009 4:05:55 PM PST by luckystarmom
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To: luckystarmom

I do agree with you on that. My daughter suffers from non-epileptic siezures and I took her off at the age of 9 months because at 9 months she wasn’t even rolling over. The medication made her so doped up, she was drunk 90% of the time. She also didn’t have seizures regularly.

However, I still watch her closely because you never know when one will come on.

I’m not blaming John or Kelly for their son’s death, I don’t want anyone to assume that. I don’t know how often their son had seizures or what his diagnosis was. I just question the Kawasaki Syndrome from carpet cleaning fluid (as there is no scientific link whatsoever) and I also question if they had him in real MEDICAL TREATMENT and not some scientology fluff.

That’s the part that concerns me. That there are parents who are refusing their children needed therapy and treatment in exchange for hookey psuedo-cult science.


79 posted on 01/02/2009 4:12:18 PM PST by autumnraine
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To: luckystarmom
dilantin/phenobarb?

That combination was devastating on a friend of mine. She was suicidal half the time and unable to function all of the time. I don't know what they use these days but if it's anything like, I would be hesitant to use it.
84 posted on 01/02/2009 4:25:31 PM PST by Sudetenland (Those diplomats serve best, who serve as cannon fodder to protect our troops!)
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