Unless I’ve missed it, no one has talked about these seizure medications and how strong they are. Having worked with a lot of neuro patients with chronic seizures, these seizure drugs can create zombies out of children. Parents have said, “I want my child back.” “She walks around like she’s drunk.” “I don’t recognize my child anymore.” “It’s like he’s looking right through us.” “These drugs take my child’s brain and suck the life out of him.” Many of these kids become so sedate or “out of it” that for their own protection, they’re fitted with helmets because of the seizures, the medication or both.
Having a child who is prone to seizures is an emotional journey that sometimes never ends. Seeing your child seize for the first time, I’d guess that all parents never want to see their child go through it again. Wouldn’t any parent want to do anything to make it stop? However for some parents who’ve dealt with scores of drugs and treaments where their children become unrecognizable, sometimes getting their “child back” for a while is where they need to go.
I’ve talked a little bit about it, but I think you just stated everything wonderfully.
My daughter was on one anti-seizure medication (keppra) and it was living H***. I was afraid she would hurt herself or my other kids. I think I would have taken seizures over that becaues she was not herself. Thank God, we found another drug (lamictal), and it is much better for her.