My memorial for Jett:
http://www.youtube.com/watch?v=b-py7vo4bWU
First, not all children or adults with seizure disorders need to be medicated. Many times even once medicated if seizure free for three years they go off medications. At the same time, many children/adults have not found medications that work to control their seizures so in turn they are known to do the Ketogenic diet to help control seizures. This was truly an accident and not exactly one that could have been avoided. It is ridiculous for people to judge and place blame. My son has 5 seizure disorders and is very lucky that the combination of two medications work for him to enable him to be seizure free. however, he missed a couple of doses a few years ago (he felt he didn’t need them and tossed one of the pills) and had a grand mal seizure in school. Therefore, we do not allow him to come off his meds even though the past three years he has been seizure free. On the other hand, my son’s friend was on medications and was seizure free for 7 years and had a grandmal seizure while swimming and drowned. Another family I know whose child had a grand mal seizure and fell into a pond and drowned. Another family lost their daughter at 15 years old to a seizure and she did not have one since she was 3 years old and was no longer medicated. Please do not place blame on one’s faith or for certain, not on the grieving and loving parents.
It’s funny that the freepers with children with seizures are the ones most sympathetic to the Travolta’s.
I’m very thankful that it looks like my daughter’s seizures are under control, but we are also dealing with side effects of the medication.
At midnight last night, I went into her room. I couldn’t remember if we had given her the dose in the evening. She was awake reading, and she said she had taken it. I would have woken her up to ask her.
It’s really hard when you change your schedule to remember the medication. I’ll program my phone to remind me, but I don’t carry around my phone with me everywhere.
She’s been on medication for over a year, and we’ve never missed a dose, but I worry about missing a dose constantly.
My prayers to the Travoltas.