Shouldn’t the decision be made by whoever is paying the bills?
Yes.
The Washington Post article contains the most information, but would have had to be excerpted.
Cost is a legitimate concern, but isn't a consideration. Whether because of insurance or personal assets I don't know, but the parents are able to pay the bills.
Utilization could be a concern, but the pediatric intensive care unit has 20 of 32 beds occupied, so apparently isn't an issue.
It boils down to who makes the decision, the individual or the state. I should note that the parents position is a conventional Orthodox position.
“Shouldn’t the decision be made by whoever is paying the bills?”
Think about that as Obama takes RomneyCare and makes it national.