Here’s the page.
http://clinicaltrials.gov/ct2/search
It will let you subscribe by RSS, so you can click on a bookmark and see the changes from the last two weeks.
It’s only a matter of time until some one starts exactly the sort of study your gson needs.
The great hope though, is that he’s at an age where healing is very, very possible on its own. I’ll pray for him and your family.
Thank you. He’s already surpassed Mott’s Childrens Hospital’s Drs first prognosis.
they said after one week (and viewing the MRI) that he’d never be able to gag, cough, talk, walk and that he’d be on life support the rest of his life.
The next day he started doing the gagging when he was suctioned and then cough etc. Yes he still has a long way to go but we found out he’s gained 10 lbs and also 2” so we know his body is still growing. In the beginning they told us that since he was still in puberty he’d have a better chance than an adult.
We’re rejoicing over the little things. When he came home from the hospital from a 2nd relapse, his bladder was not working after a surgery they did. The Dr told us that this was the beginning of organ failure etc and that’s how things go with “these type of injuries” until eventually...well ... then end.
About a week later I got a call from our other grandson (his older brother) that he had peed on his own! Well hallelujah!!! We screamed out YEAH GOD!!! We’re learning to redefine “miracles”
But I definitely will bookmark that site..