Tyler Savage: he is fed through a tube in his stomach
Posted on 10/02/2007 3:51:14 AM PDT by 8mmMauser
Tyler Savage: he is fed through a tube in his stomach
A boy of 12 suffers from so many allergies that he is able to eat only five foods.
Tyler Savage is violently ill every time he is given dishes containing dairy products or wheat, gluten, eggs, lactose and soya.
The sole foods he is allowed are chicken, carrots, grapes, potatoes and apples.
To help him survive, minerals and vitamins are pumped directly into his stomach through a tube.
Tyler started to fall ill at the age of six when even a morsel of food would leave him writhing in agony from sickness and diarrhoea.
His mother, Lynne Savage, 43, said: "We asked for help but kept being told that he was suffering from a stomach infection. As a result his weight dropped drastically.
"He ran out of energy really quickly and couldn't do the things other children were doing. He just seemed to be getting worse and worse.
"It's been a real struggle. We didn't know what to do."
Tyler - from Earls Colne in Essex - was seen by a paediatrician at Chelmsford's St John's Hospital and had his appendix removed in December 2005.
Although the operation was a success it failed to solve the problem and he was referred to Colchester General Hospital for further tests and treatment.
That shed no light on the mystery illness and in April last year Tyler was sent to Great Ormond Street Hospital in London for checks on his stomach and bowels.
The tests led to a diagnosis of eosinophilic enteropathy, a rare and condition in which the intestines produce too many white blood cells.
These act as a miniature immune system and attack food passing through the gut to the stomach.
The condition saw Tyler's weight drop to barely three stone.
"He was becoming malnourished," said Mrs Savage, a married mother-of-three and housewife.
At first, Tyler was fitted with a nose tube to help get food direct to his stomach, bypassing the rogue blood cells in his gut.
Then, this May, he had a tube inserted into his stomach allowing him to be fed for up to ten hours through the night.
"Even though this will continue for the foreseeable future, it is a godsend," said Mrs Savage.
"Last year he was only at school for about ten days, but in the first two weeks of this new term he's only missed one day.
"We've got a long way to go but at least we're now getting some answers."
In the day, Tyler, whose father, David, 60, is an engineer, can eat the five foods he is not allergic to.
Yep. Business as usual in Florida. You've got to lighten up FV and join in on the laughter. /s
If I thought about the bad stuff that happens here 24/7, I’d have to move. I don’t and I’m not. Cheers.
my pc’s so slow, how long’s that youtube link you posted?
>>>Yawn. Get over it.
Being a true conservative, pro-life and all that? Naw, I guess not. That is why I am on FreeRepublic.
Sometimes we paranoids are right, too. Luckily all my used parts are worn beyond minimum tolerance, but even then, I would get nervous in such a situation. Thanks, BB, for the tip.
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The family of the local man, who died when a doctor gave him high doses of morphine, after he was identified as an organ donor candidate, has settled with Sierra Vista Regional Medical Center. 26-year-old Rueben Navarro died at the hospital earlier this year. Transplant surgeon Hootan Roozrokh is accused of three felonies in connection with what happened in the hours before his death. Navarro's family filed a civil lawsuit against Dr. Roozrokh, his partner, Sierra Vista and Permanente Medical Group. Yesterday, a $250,000 settlement was reached with the hospital. "Sierra Vista has taken steps to address the negligence that was there and has stepped up to the plate and acknowledged its responsibility and reached this settlement," said Kevin D. Chaffin, Rosie Navarro's lawyer. Sierra Vista told Action News it entered into the settlement with Ruben Navarro's mother in an effort to put the incident behind them and hopefully allow her healing process to begin. The criminal case against Dr. Roozrokh is ongoing.
Family of local organ donor, who died of excessive drugs, settles with Sierra Vista Hospital
8mm
Do I have to have a living will? Last year, I had an experience that gave me the distinct impression that if I didn't have one, my life was hardly worth, well, living.
~Snip~
Furthermore, I found something weasely in the way all those options were presented, as though my only real choice were between being dispatched into the hereafter at the first sign of loss of consciousness or being stuck with as many tubes as needles in a voodoo doll and imprisoned inside a ventilator until global warming melts the ice caps and the hospital washes out to sea. I found the box on the form that said "I decline a living will" and checked it. Right now, my husband is my living will, and after we spent 13 days observing Terri Schiavo exercise her "right to die" by being slowly dehydrated to death after her feeding tube was removed in 2005, he knows exactly how I feel about such matters.
A few days later, when I returned to the hospital for the surgery, a different receptionist handed me a second living will. "I've already gone through this," I said, handing it back. After the operation, I was back to begin six weeks of daily radiation. A third receptionist pulled out the very same form and asked the very same question: "Do you have a living will?" At least I knew where to find the "I decline" box fast.
BACK OFF! I'M NOT DEAD YET... I Don't Want a Living Will. Why Should I?
8mm
I’m not sure if it’s just my imagination, but it seems that, since Cardinal Josef Ratzinger became Pope Benedict XVI, “progressives” in the Church have grown bolder in their public defiance of the Catholic Church and her traditions.
Take, for instance, the “board editorial” published in the Oct. 1 Los Angeles Loyolan, the student newspaper of Loyola Marymount University in Los Angeles. The editorial, as California Catholic Daily reported on Oct. 11, took “traditional” Catholics to task for their criticism of Loyola Marymount university president, Jesuit Fr. Robert Lawton. In particular, the editorial said the Lawton regime has been criticized for allowing “speakers who call celibacy ‘a system of power, of patriarchy,’ who defended Michael Schiavo's right to deprive his wife of both food and hydration, who are pro-choice politicians and who are major critics of the Catholic Church” to “grace” LMU “with their insight
"“Even the ‘Vagina Monologues’ has visited LMU,” said the editorial
8mm
For years the blue blood, country club Republicans have resented the fact that they have had to come to religious conservatives with political hat in hand in or order to get elected. The instant they believe they can win without us they will put their hats back on their heads and give us the back of their hand. Rudy Giuliani’s current lead in the national polls gives the blue blood their best hope to regain control of the party from what is in their minds, the “great unwashed religious right.” Even if Republicans lose the White House in 2008 if Giuliani is the party’s standard bearer the establishment Republicans will have won a great victory. They will have successfully relegated religious conservatives to nothing more than a vocal irritant to be tolerated but not taken seriously.
Selling Theological Birthright for a Bowl of Political Porridge (GOP Nomination)
8mm
I didn't know obsessing over a dead woman is part of being a 'true conservative'.
FYI: Last night, Bobby Schindler, Atty Gibbs and Dr. Destrow were on cpan, their Georgetown appearance. Maybe there’s a transcript. I wasn’t near my pc to post a tv newsflash but it was very informative. Atty Gibbs said that what happens in dehydration that the heart eventually explodes because there’s no water in the system.
Sunday night bump.
BUMP again.
>>>I didn't know obsessing over a dead woman is part of being a 'true conservative'.
Then you too can learn not to obsess over a dead woman if you want to sound conservative.
You can do like we do and defend her legacy to protect other such innocents from being killed, like true conservatives do. If you actually read our huge number of threads and posts you would have known that a few years back. You must know by now that FreeRepublic is founded based on such principles and I am sure you do as a long time solid poster but we all have our lapses.
We all can learn. I am glad you learned something important.
8mm
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On the culture of life
DS: What do you think is the greatest threat to humanity?
SB: The lack of regard for life as being sacred I think would be my biggest threat to humanity.
DS: What is the culture of life? How would you describe that phrase?
SB: It's seeing all life, at all places, at all stages as beautiful and unique, sacred, a child of a loving God. To me that's what a culture of life is, and us having walked away from that, we've had millions of abortions here, hundreds of millions around the world, people that should be here but are not.
DS: Bobby Schindler, Terry Schiavo's brother, endorsed your candidacy by saying that "Sam Brownback is the pro-life conservative we can trust to stand for all life, regardless of political calculations." Do you think the death penalty detracts from the culture of life?
SB: I do, and that's why I am not a supporter of a death penalty, other than in cases where we cannot protect the society and have other lives at stake. But again, I understand people who support the death penalty saying, "This is different," whether it's an innocent human life or somebody that's committed a heinous crime. In trying to move forward with a culture of life, I think we need to try to do that in every setting, including the use of the death penalty by the State.
Sam Brownback on running for President, gay rights, the Middle East and religion
8mm
2003 - Terri Schiavo's feeding tube is removed following numerous failed petitions by her parents to prevent such action.
8mm
Hear it from Cokie Roberts and company...
But religion as a guide or a beacon or an inspiration is one thing. Religion as the dominant credo or a blueprint for public policy can be a source of disastrous discord. John Danforth, a Missouri Republican who served three terms in the Senate, cites two congressional actions that demonstrate how his party has become "the political arm of conservative Christians."
One: Upholding President Bush's veto of a bill expanding Federal funding for stem-cell research. Two: Passing a measure barring Terri Schiavo's family from disconnecting her feeding tubes.
The 'agents of intolerance' return
8mm
The Coalition on Abortion/Breast Cancer notes that Christopher Wanjek of LiveScience.com labeled the abortion-breast cancer link as a "persistent myth."
We issue four challenges to Wanjek. First, act like a real scientific expert by participating in a public debate with our experts...................................
Women's Group Challenges Web Site on Abortion-Breast Cancer Link
8mm
http://www.washingtonpost.com/wp-dyn/content/article/2007/10/12/AR2007101201882_pf.html
FV says: They should just call living wills "leaving" wills.
As per a post by sun, the nrlc has a will to live which is written to keep over eager med school grads and institutions from facilitating or expediting death. Universities teach physician assisted death vigorously. We already knew universities were koolaid drinkers. They mix it so to speak.
Shimmy to the left, the koolaid dance.
My post is same story as your’s but worth repeating. Some hospitals don’t even bring up Living Wills. Other hospitals shove the living will in your face before they even know your name or your relatives - now that’s rushing things.
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