I've done plenty of it believe me especially with my state. People can not understand catastrophic illness till it happens in their family. I don't care how good of insurance you think you have it's not good enough. Most employers discontinue coverage after 30 days missed worked and the persons insurance is lost upon discharge from the hospital. That leaves you with Medicaid and Medicare.
Our state put Medicare into a semi Universal Health Care system for the state and things really got bad. At one time she was over eight months without a doctor and the prescriptions nearly ran out.. Nobody would take her as a patient because they got less money than even a Medicaid patient.
That got a whole lot better about 5 year ago with a new governor who demanded accountability and cleaned up the corruption. I will say this when I take on our HMO I win :>}
We are fortunate to have private individual plans.
Yes very spendy but more than pays for the 8 grand a month it costs to keep him with top of the line medical equipment and I am actually saving the ins. co money buy refusing care that will hurt him and demanding home care.
I do his careproviding but I finally managed to get a private lab on orders to do blood draws at the house.
You know it takes hours to get up to go out and then break it all down again. (compulsive hyper comes in handy at that point).
But for a 2min blood draw and right now he is just recovering from a great staff 12 day hosp stay but the twin bed was more than his flailing limbs could endure even with siezure pads on.
So decided if he is going to stay here with me on earth we have to make some care changes.
He wants to go like someone without a disabilty but after 28yrs (may 23rd) we gotta slow down if we are going to live.
Lungs go into bronchial spasms now when he gets stoked aka happy to see freinds/socialize and all the bronch dialators ect in the world ain’t gonna fix the brain damage that is not getting the message to his lungs.
We also have to carry suction when going out now due to the copious and I mean copious secretions he makes Oregon rain look like a drought LOL.
IOW he is as I aging so for now it is lay low and his social arena are sending postcards/cards to him.
He loves when I come back from my walk to the mailbox and yell “MAIL CALL”.
Got to be innovative in all you do when on a team like this.
God Bless.