Oh my gosh. Is the child in pain? I find it impossible to believe that people think this is the humane thing to do...should we, just because we can?
I am sure that is she uncomfortable. She constantly has pneumonia and her frequent illnesses and seizure have cost her plenty of unpleasant procedures. I don’t think she is in any pain from the condition itself, but from the things we do to keep her alive.
There are many children like this, unfortunately. I have taken care of many infants born with underdeveloped brains that we keep alive. In some cases, the child isn’t able to “think” because of severe brain damage. If a child can’t think, can’t eat, can’t control his own body temperature, can’t breath on his own, is it fair to keep him alive for the sake of the parents? I think not. I believe it is inhumane to deny food and water to a person to hasten his/her death, as we are in the business of providing comfort. But in nearly all of these cases, just ceasing to use extraordinary measures and turning to hospice or other types of comfort care, the child will pass on with dignity and with little or no pain.