This remains a tough topic for me based on our own experiences. I have a hard time posting this without letting my anger grow into wild fury. I repeat. Such procedures are simply experimental and are cosmetically feel-goods for the parents and guilt-ridden, are a disaster for the child who would have remained naturally small anyway.
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(CNN) -- David is a young man with severe cerebral palsy. He can't walk, he can't talk, he can't sit up by himself, but he can blog. This week, David blogged about Ashley.
"Ashley's parents have committed the ultimate betrayal," he writes. "They have treated their daughter as less than human, not worthy of dignity.... What strikes me about 'the Ashley treatment' and has brought me to tears is that the very people in all of society whom this child should trust have betrayed her."
Everyone on the Internet, it seems, has an opinion about what Ashley's parents did to her. Ashley, 9, has a condition called static encephalopathy, which means an unchanging brain injury of unknown origin. She's in a permanent infant-like state -- can't hold her head up, speak or roll over on her own. (Read a Q&A with the ethicist who helped decide on Ashley's treatment. )
Ashley
Disability community decries 'Ashley treatment'
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Ping to a thread by TheDon on miraculous good things happening...
"I believe Amanda is a miracle," her mom says. A miracle that she insists she never doubted – would never permit herself to doubt. "Instead of crying … I remember singing praise songs in the shower. We become warriors when we have to be.
"When tragedy strikes, you … get down on your knees and you seek all that you can muster up to pull you through. I got in the Bible and I read day and night through the Scriptures and I looked for a sign. Whether to believe the doctors, that Amanda, if she ever did make it, would be nothing more than a vegetable. Or to take that Scripture and hold it close to my heart and believe it without a shadow of a doubt."
Mandy's baby (Mom recovered from coma)
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