You probably don't know that standard operating procedure for the FDA is to let five, six, ten or more people suffer or die from lack of medication or therapy rather than grant FDA approval for a drug or therapy that causes one person to suffer or die from the drug or therapy.
It is in the self-interest of the FDA to not have the blemish of approving a drug that kills people, despite how many more lives it saves. That is irrational and a crime to let people die when they could have lived. Just as it is in the government's self interest to not allow the FDA to approve medical marijuana despite not even one death ever caused by marijuana. That too is irrational, a crime to impose suffering on persons that could live without the suffering.
More on violating the inalienable right to life, liberty and the pursuit of happiness see post 26.
This has nothing to do with the government/FDA. I personally know several people who were cured of HD with treatment regimens that have been showing success for years. One is the daughter of good friends of mine who was diagnosed at about the same age as Abraham. She is now a young woman in her thirties and is married with a beautiful baby girl.