She didn't die of Chronic fatigue syndrome.
She had a debilitating neurological disease with fatigue as a major side effect.
This type of false news reporting will allow all my neurotic patients the joy of saying "See, I was really sick".
For every TRUE chronic fatigue syndrome (often starting after a viral illness) I see a dozen neurotics.
They always want a fancy diagnosis. It used to be hypoglycemia then it was chronic candida,then it was "fibromyalgia", then it was food allergies then it was whatever. You can see this type in feminist meetings where "no perfume" is the rule, and weird ideas abound.
Now, I have food allergies, (break out in hives after eating too many big Macs) perfume makes me sneeze, and hypoglycemia (on Glucose tolorance test I went down to 37 and got shaky and threw up) and I have muscle pain when storms come thru. so I can sympathize with people with real disease.
All of these things are "real" disease, and we don't have good treatments for any of them. But the neurotics often have mild forms of any or all of these, and you don't know where to start, since their lives revolve around their symptoms.
But I don't build my life around these things.
You know why? Because I've treated people with REAL disease, and know the difference.
My problem is I cannot find a Doctor that will listen. I get about four words out, and boom, they think they know what it is. I have yet to find one that will listen. Ten minute rule I guess.
You remind me of the doctor that I went to because even after sleeping all night, I was as tired the next morning as I was the night before. I was 28. He told me I had "bored housewife syndrome". I asked 2 more doctors and gave up as it was always "in my head". I'm now 56 and still haven't found a doctor who cared enough to find out what's going on.
I'm sort of sorry I posted before I read this far, but I thought you had left us.
It's really all Lyme Disease...
I've always been a magnet for the patients who are allergic to "binders and excipients." Who hate doctors. But keep coming back.
No wonder the leading cause of deaths for CFIS/ME is suicide with doctors (are you really?) like you. Interesting enough, after being diagnosed with CFIDS/FIBROMYALGIA the last 13 years, it has finally been PROVEN via lab work that I have CVIDS (Common Variable Immunodeficiency). Neurotic?? Your comments leave me speechless and irritated because it is people like you who have DELAYED the much needed medical resolution to this DISEASE. I am glad that my doctors ARE NOT like you - I would be dead by now.