I did a search on prior posts for "computer" "simulation" and "photoshop" and got nothing, so here goes:
I know it's a second best answer, but couldn't somebody work with those who have seen her, with the help of a knowledgeable doctor, preferably one who has studied the case, and do a computer rendering of what she actually looks like, and then have the witnesses who saw her say "yes, that's how she was"? Perhaps even do a time-lapse thing to show the deterioration?
This doesn't beat the real deal but it beats a blank by a mile.
See #321. Can the family be contacted about this computer rendering idea if you think it's worthy?