The mother of an infant with an often lethal skeletal disorder won another temporary restraining order late Wednesday in her fight to keep a hospital from removing the boy from life support.
I'm not a doctor or medical professional. But 'often' lethal doesn't seem worthy of removal from life support at just 6 mos. I teach a class as a volunteer. One of my students this year has a similar medical situation. I don't know if it's the same, but similar. She is now 8. One side of her body, including torso and ribs, has failed to grow, at least at the same rate as the other side. She has had numerous surgeries. And will need more. I don't know how similar these cases are, but... maybe the hospital has failed this young boy, his mother's flakiness aside.
Right, that "often" snagged m too. "Often" as in 82% of the time, or 99.9% of the time?
Dan
That's the reporter's phrase.
You'd have to know the prognosis from the treating drs on this specific case.
One of the sites I looked at this morning said that a handful of kids born with thanatophoric dysplasia ('thana'--Greek for 'bringing death') survived into childhood and all were severely retarded and had 'breathing difficulties.' Most of the babies afflicted with this are stillborn. At six months, the Hudson baby was still on a breathing tube leading me to believe that the prospects for the baby to breathe on its own were very, very poor. The breathing tube means that the baby could not eat and would have had to been tube fed.