Please let me know if you read my post #111 on this thread.
Your description of Chris's symptoms made me think of Wegeners Granulomastosis....Wegeners Disease for short. This is a very rare disease of the immune system and is usually only recognized by Reumatoligists that have had occasion to confront it previously. There are only about 2000 to 3000 cases in the US.
Symptoms of "Wegeners Granulomastosis": a severe sinus cold that does not respond to conventional antibiotic treatment, followed by fatigue, night sweats, joint pain and eventual failure of one or more organs.
I urge you to have Chris's Doctors look into this as a possibility. If he has Wegeners and it remains undiagnosed, his new liver will have little chance of improving his prognosis. The class test for Wegeners is a blood test called ANCA - followed by confirmation with study of a tissue sample.
You should know that I am not a Doctor, but I have the disease and have beat it into remission, 3 times - it takes chemo and cortisone but it can be beat.
They have that info in the package. Thanks. I could only talk to an official of the hospital.
I sent your note via email to Patient Relations.
I sent them your info by email and an administrator advised me that the doctors are well aware of that disease. They thank you for your concern in passing on the information.