MAYBE THE DECK IS STACKED AGAINST TERRI AND FUTURE TERRI's. Who likes to do research??? ROBERT WOOD JOHNSON FOUNDATION. Thanks in advance. I need to go do laundry. Be back later. I'm ignoring my real life again. lol
http://www.rwjf.org/programs/infoByArea.jsp;jsessionid=B2Sl5gFUg22hNoNhuxqpGE0JvDjpJmzwFbE5KZ9L3mtfTSsBXihe!1491292772?value=End-of-Life+Care&id=000006
links to the following topics ROBERT WOODS JOHNSON SITE
Disparities at the End of Life
African Americans have unequal access to health care compared to whites in all areas, studies show. Perhaps not surprisingly, these well-documented disparities persist through the end of life. An RWJF expert panel discussion explores the issue. More>
* Webcast
News Releases
Notices providing timely information about Foundation activities.
* First State-By-State 'Report Card' on Care for the Dying Finds Mediocre Care Nationwide
* Health Care Disparities Include Care For Terminal Illness
* Thirteen Communities ReceiveGrants to Improve Local Services for Older Adults
Research
The latest RWJF-funded research in this program area.
* Learning Pain Assessment and Management
A Goal of the End-of-Life Nursing Education Consortium
* End-of-Life Education Using the Dramatic Arts:
The Wit Educational Initiative
* Out-of-Hospital Death
Advance Care Planning, Decedent Symptoms, and Caregiver Burden
Publications
Documents and publications produced by the Foundation and its grantees, including articles from the Foundation's newsletter and Annual Report.
* 1997 Annual Report
Bump!
Robert Wood Johnson Foundation
Last Acts (ACT again) Last Acts=Partnership for Caring/Robert Wood Johnson Foundation Connection
Choice in Dying Choice In Dying
... We are now Partnership for Caring: America's Voices for the Dying. Click
here to get to our new website. www.partnershipforcaring.org:
www.choices.org/ - 2k - Cached - Similar pages
National Hospice Organization check link redirect
Society of Health and Human Values-Society for Bioethics Consultation Task Force
National Consensus Project NCP - Ira Byock Partnership for Caring
Project on Death in America Research and Policy Organization Links
Florida Partnership for End of Life Care Coalition Sites - 21 Florida Sites
*Florida Partnership for End of Life Care Site with Links that Tie Many of the Organizations Together
About Rallying Points (connection Ira Byock (MVQOLI), Midwest Bioethics Center and Last Acts)
From the.... Hospice is for Caring ... or is it for Killing?
How did this situation arise? Hospice chairman of the board at the time, George Felos, is the attorney representing Michael Schiavo's efforts to kill Terri. When Michael Schiavo contacted Felos, George had just the place to kill Terri: his very own hospice! So, he stepped down from the board, temporarily of course, until the legal battle to kill Terri is over. After the legal battle, we're sure good old right-to-kill-patients-advocate George will be right back on the board. George (Felos) is a student of Ira Byock, MD (a well known hospice physician) who advocates adding "aid in dying" (through terminal sedation) to the mix of "services" provided by hospices.
Dr. Ira Byock, long time palliative care physician and advocate for improved end-of-life care, and a past president of the American Academy of Hospice and Palliative Medicine, provides written resources and referrals to organizations, web sites and books to empower persons with life threatening illness and their families to live fully.
Felos mentions Byock in some of his early writings.
The following site is long gone (December '03) and will not copy to post:
Transforming the Culture of Dying PDIA
Profiles of PDIA-Funded Researchers and Projects
Exerpt: (located below midpage)
Ira Byock, M.D.
Barbara K. Spring, M.D.
As a hospice physician and medical director, Dr. Ira Byock is only too aware of the difference between a "good" death and a "bad" death, and the fact that the latter far outnumber the former. But instead of working only with the medical profession to reverse this equation, he and gerontologist Dr. Barbara K. Spring set out to engage an entire Montana town in examining the dying process and making it better. The Missoula Demonstration Project: The Quality of Life's End is the most ambitious effort of its kind in the United States. Modeled after a famous long-term heart disease study which collected data on an entire community, the 15-year Missoula Demonstration Project aims not only to improve the quality of life's end in Missoula, but to stimulate other efforts throughout the country. Organized in 1996, and overseen by an international advisory committee, the project is engaged in several studies to understand people's experiences, attitudes, values, customs and concerns about death. By looking at 250 families which experienced a death within a one-year period, for instance, and by gathering data in all health-care settings that treat or care for dying people, researchers hope to create, as Byock puts it, an "intensive, high-definition picture of dying, death and bereavement in Missoula." "Our approach," says Barbara Spring, "is to focus on what people seem to worry about the most-pain, the length of the dying process, isolation, and other things that make them miserable."
Bioethics Groups (Midwest Bioethics Center included)
Rand Center to Improve Care of the Dying