Oh my God. The poor little girl. It doesn't mention a nose, how does she breathe?
Trach tube.
and she has a trach to breath
More about this condition (examples of less severe cases, before-and-after photos):
http://www.kidsplastsurg.com/treachercollins.html
http://www.erlanger.org/craniofacial/book/treacher/treach1.htm
Here's the web site of one young woman with the condition who is an Internal Medicine and Pediatrics resident at Baylor College of Medicine in Houston, Texas.
http://www.treachercollins.org/main.html