Those agencies and institutions are funded to be your saviour, but in reality, they are minimal assistance at best. You've gotta tackle it on your own.
Ever been grocery shopping at midnight? Most the people taking their time, buying a full order of groceries are parents of children with disabilities. It's the only time you can get enough peace and quiet to do it, that being when they are sleeping and another parent is at home.
If we had had my son when I was in my twenties, it would have destroyed me. He's a gift in my fourties.