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When the researchers start documenting more of what us as careproviders see it will be more benificial to other with disabilities to follow.

Stop treating the Labels put on kids in clinic and start treating the kids as individuals.

I got this deal to fill out by a student at Oregon Health Sciences for her thesis it was so far out there none of us filled it out.

It was all about the names and labels one prefers for their disabled child/adult loved ones. To PC termonlogy. Who gives a crap.

Back in the day they use to lump all kids with severe Cerebral Palsy into one catagory as parents we all knew different each child is an individual just as non disabled kids are.

When my son can't breath he wants medical treatment not disbelief from the medical community that he has lived 24yrs with abilities of a newborn and the intelligence beyond the avg. person and why is he so pro life. Damn treat his asthema so he can breathe and if you are in such disbelief take the time to sit down and share our life for a moment or shut the hell up.

I by accident saw a man once that was going into surgery he as God as my witness looked like the beast in beauty and the beast and then some but I got the opertunity to look into his eyes and I saw his soul it was warm and loving. The nurse with me got visibly upset at seeing him and quickly turned to me to see my reaction. I looked back at him and her with a smile of love.

Then we have humans who are charismatic and beuatiful in accordance with society and they have empty souls.

Tiamat they (society) either get it or they don't. Enjoy the gift God gave you. Even on the long I am tired days we have a gift given for us to care for and love. Don't know why I just know God does.

I am sure he will let me know if it pertains to his plan when I meet him on judgement day.

LOL!

Hello FRiend.

And HELLO! to your son. One of my favorite teachers had a son with CP.

I know whereof you speak.

People laugh at me because I refer to Caitlin as "My wealth" and "My gift from God".

It took me forever to get pregnant. Not through lack of trying!

I miscarried twice. I had to have a C section to have her , and I will not be able to have any other kids. I figure there has to be a reason that SHE is MY baby!

I take such joy in her. She is kind, and funny and quirky.

My blessing.