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Roni is completely better. She had a rough three weeks or so immediately after the transplant, and was at the Ronald McDonald house in Fort Worth for 3 months so that she could be close to Cooks Children's Hospital. But, she was able to go to daycare about a year ago, and we got her Portacath removed last November (she'd had it since she was about 6 months old.)

She's cured, as far as we know. There is very little risk of a rejection with umbilical cord cells, and she's past the time when it should have happened. She will have to have blood work every 6 months or so, as much for the rest of us to feel safe as anything. And, she may never know exactly why she was born that way. Evidently, she doesn't fit any pattern for genetic causes.