Marilyns doctor told me via phone this morning that Marilyn could leave by today or tomorrow, then he met Claudia. Discharge has now been postponed until tomorrow or Saturday. Now at the 11th hour he wants to bring in a neurologist. As Claudia says, hes trying to cover his a$$. Marilyn has been lying in a hospital bed for 38 days, deteriorating because the HepC is not being treated.
The doctor also made me get permission from our older brother in New York to release Marilyn to Hospice at Home. After talking to Claudia and learning about our plan he faxed his okay on a piece of paper with the letterhead from his job: Cornell University Medical Center. The staff looked twice at that. Little do they know hes just the librarian there.
Marilyns glad Claudia is here, she got anxious when Claudia wasnt in the room. Marilyn was pretty alert today, 'tho its so hard to understand anything she says. Shes ready to go with us wants her pants and coat wants to show us she can walk. Actually, she cant sit by herself at this point in time.
Claudia looked over most of the charts the ones theyd show her and determined that the physical symptoms Marilyn has now are caused by the HepC and not the meds and was appalled that the hospital would let her just lie there. But, I guess their hands were tied too, if Shands wouldnt accept her as a transfer, what else could they do?
I cant wait to get her up to Shands!!! Maybe they wont be able to help her, but Id never forgive myself if we didnt try. We hypothetically had to tell the case manager what was going on. She was concerned that we were planning to take such a young woman home to die. Maybe she thought it was better that Marilyn just stay there and die???
Hey, guys, could you muster up a couple of prayers for Claudia? She has to go to a settlement hearing tomorrow. After twenty-seven years of marriage shes going through a bitter divorce with a man who would rather kill her than give her anything. Last time he came after her with an axe. She is armed constantly now-a-days.