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To: SarahW
Continued prayers
392 posted on 12/08/2003 10:38:13 PM PST by TheCookMan (Communism thrives when good people do nothing.)
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To: TheCookMan
I am very grateful for your continued prayers. Thank you for helping my child.

Today Andy sees the neurologist again. He was sceptical of the radiologists reading of the MRI films (she thought there was increased signal withing an enlarged optic nerve, the neurologist thinks that's due to Andrews head being tilted during the scan); I think he still suspects a retinal problem, though tests and examinations have not borne this out so far.

He's going to order mtDNA tests of Andy for LHON, a disease that could take the sight in Andrews remaining eye at any time, overnight. Leber's is rare, but all too possible for Andrew.
Knowing will help us prepare and plan in the worst case, maybe even give Andrew access to medicine that is being tested to delay or prevent loss of remaining sight;
and give us much more peace of mind in the best case of a negative test result.

We took Andy to the local Botanical gardens last night; it's decorated with a fantastic display of colored lights.
It was beautiful.

393 posted on 12/09/2003 8:14:17 AM PST by SarahW (God Bless you all!)
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