Hi kickass. I’m sorry your suffering with MDS. Hopefully it will not progress to AML. I was diagnosed with AML a year ago. Went thru the induction and consolidations and had a bone marrow transplant. I’m FLT3 so there wasn’t much way around not having the BMT. I would have just kept relapsing.
Have they started you on any chemo - Vidaza? I’m hearing good things about it these days? After my BMT I have continued on a 5 year trial of Sorafenib. Made for kidney/ liver cancer. But inhibits the flt3 gene.
Sorry you are going thru this. Not many know much about acute blood cancers. But, it sounds like you must.
Right now the MDS isn’t an issue. It will be at some point, but so far so good. There is no Genetic Mutation that caused my original diagnosis for CLL, just dumb Luck.
The MDS is only compromising about 10% of my Marrow right now and it isn’t too aggressive “yet” so we wait and see. It isn’t a matter of if, it’s a matter of when.
After my last Chemo for the CLL I was informed by my other Oncologist at Cedars Sinai (part if their BMT Team) that I will probably never need Intravenous Chemo to treat it again.
Apparently there are some new Oral Chemo Treatments that are very effective for CLL, so some good news with the bad.
Thanks for the info. I’m glad you got through the BMT well, it can get pretty hairy. A friend of mine was able to do Autonomous BMT to treat his Lymphoma. Was your Donor a Sibling or did they have to find you a matching Donor?
I have one older Brother who is almost 70 and he actually is a close match. The odds are only 25% and the people at Cedars couldn’t believe it since he is my ONLY Sibling. I know a guy with six Siblings and none of them matched.
If he is still around when it comes time for a BMT I should be in good shape. Might have to do a Walt Disney with him. My Brother’s Wife had a chuckle when I told her that but my Brother wasn’t too amused. LOL