Posted on 01/12/2006 8:39:35 AM PST by dhls
Augmentin became just another in a series of antibiotics and other meds that were totally ineffective on my immune system. It is so "up-regulated" because of the CFIDS that I don't even worry about catching the flu or a cold. :o|
My grandma has fibromyligia, Lupus, Sjögren's Syndrome..
People who don't have chronic stuff dont understand about how hard it can be to treat things that don't behave normally.
Maybe I shouldn't have posted this on that thread...
Too late now.
Sadly, the people who need to know the most about it (doctors) are often the people who send those who are chronically ill to psychiatrists. As if that is the magic cure.
Doctors like things to be put into nice, neat little categories so they can feel good about finding it. Unfortunately, most chronic diseases don't "act" like they "should" and therefore, it unsettles the professionals.
I like to think I'm the "expert" on CFIDS when I go to a new doctor, because I'm the one who has been living with the disease and it's restrictions.
But don't get me started on my experiences with ignorance...;o]
Yah! I'd vote for him! (NOT!!!)
On second thought...he is "honest..."
1. Take a pacifist. Tell them that no matter what you do, they must not fight back.
2. Hit them in the face as hard as you can.
3. When they get up, remind them of their pacifism.
4. Hit them again. Harder.
5. Repeat until the lesson sinks in or you end up killing them. Every way, it's a "win".
I bet fear would take hold real soon, and they would suddenly decide America isn't so bad, after all.
Stupidity goes to the bone.
While there are many diseases out there that require more research dollars, there should be a privately funded study to see if it would be possible to make stupidy painful for those who insist on displaying their stupidity for all to see.
I was just thinking that. Whenever you have something chronic and not normal, the drs. don't really like it, particularly if it's a hunt and peck sort of trying to find something that helps. People look at me like I'm crazy when I tell them about my tummy troubles. And that's just biliary spasms. They can test for that by giving one a dose of morphine or demerol. If you get painful sick afterwards in your chest area, you are having biliary spasms.
But before the drs. sent me to the right doctor, they gave me the "why are you in pain when your endoscope looked so good" look...The demerol from the endoscope I had just had triggered a real pain bout. Finally one of the gastro doctors noticed that one of my liver enzymes was a little off (it goes off if you have gall bladder trouble, but I didn't have a gall bladder.) but not much.
She sent me to another doctor who fortunately knew just what was happening.
You have my big sympathies for when your drs are being bad.
I agree wholeheartedly. The worst thing about stupidity is that it can adversely affect even the educated.
I saw a new doctor this week, without the benefit of my previous medical records, and guess what? She has no clue what CFIDS is and what it does, and attributes my "fatigue" to heart problems, which are due to poor circulation, which I've had all my life.
Needless to say, I will have some information for her on my next visit, or it will be my last visit.
I think we should quarantine the terminally stupid. At least then we would know not to "go there."
;o]
Quarantine? Like maybe just walling in Los Angelos? That'd work. It'd also keep them from running on the ballot during elections. ;-)
Yah...LA or 'Frisco would work. We could send the Head TeleTubby (Bloviate Kennedy) and his puppets out there....that way, they could run all the liberal programs they want. We could even let them have all the illegals they want to support.
Wait. I think I'm getting carried away, here...
Thanks, but CFIDS won't allow me to tolerate stupidity in those who are supposed to help me. Most of what I know about it, I had to find out myself, then try and convince a doctor that after everything else was "ruled out," the only thing left was fatigue disease.
Thankfully, there is the CFIDS Association which keeps me posted on research and other things to help deal with it. I'm going to send for some info specifically for those in the medical profession so I can present my doctor with it when I go for my follow-up.
If she then decides it's time for me to see a psychiatrist, then I will give her a Barbie wave and disappear.
The right attitude. By now, you probably know more about it than most drs.
Maybe not. But I know more about it after 15 years with it than a doctor does after 15 minutes with me.
;o]
*retch*
And that is for sure!
Hi!
I finsihed "Dreamcatcher" last night. It's actually a cross between "Pet Sematary" and Dean Koontz's "Mr. Murder."
Have you started it, yet?
I'm still trying to figure out why he used completely different artists for every novel in the series.
I guess the idea is to allow the "constant reader" to keep his or her own vision of the story's main characters, but it becomes a bit of a distraction after the fifth or sixth illustrated book.
As near as I can figure, this doctor was in high school when I first showed symptoms of CFIDS, so I'm thinking this is one time when my common sense and experience will trump her education. Maybe. ;o]
You know how that works...if you tell a new doctor you have something that is seldom seen, and your records aren't available, they want to schedule you for a barrage of tests, just to prove you are wrong, and/or so that THEY can be the ones to tell YOU what's wrong.
Ain't happenin' to THIS ol' gal!
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