11th Entry January 13, 2010 8:30 AM Well, we are on our way this morning for Houston. We have my first appointment tomorrow morning at 8 AM at MD Anderson which is a registration and orientation meeting, followed at 9 AM by a longer meeting with one of their sarcoma physicians. we then have another meeting at 2 PM.
By the end of tomorrow, we should have a much better idea of what the immediate future holds, though we suppose they will let us know their thoughts and diagnosis based on the clinical, MRI, and pathological data from Idaho, followed by several days of their own tests, scans, etc. But we shll see and I will record it here, on my site, and on FreeRepublic.
I also wanted to link to a wonderful journal from another Chordoma patient from some wonderful people up in the northeast (Jim and Nacny Forte) who have been going through a similar set of circumstances but are several months ahead of us. Jim also was diagnosed with Chordoma (after an earlier false diagnosis) I thought that this journal, put together by Nacny, very informative and very well written and wanted others who may find my own to benefit from that one too. with their permission, here is a link to it in Microsoft Word format.
http://www.jeffhead.com/chordoma/LeapofFaith.doc
It will open in Microsoft Word if you have it.
Thank you James and Nancy for contacting me, sharing your information, for your faith and prayers, and for being willing to help us, fellow sorjourners, on our path.
Also, we are finding as we prepare to go down to Houston several doors and blessings opening for us that I will be able to discuss later once we are there. Surely the Lord God is showering us with blessings as a result of the faith and prayers of so many on our bbehalf.
The least of which has not been my brother Lee and his wife Brenda. Thank you, Lee and Brenda, my wonderful older brother, from the bottom of our hearts for your generosity and graciousness...and more importantly your faith and prayers on our behalf as we were blessed and priveleged to stay with you in your home these last 10 days.
For you, and for all who exercise faith and kindness on our behalf, I can only pray myself that the blessings ae returned to you many fold from that same God in Heaven, and our Lord and Savior, Jesus Christ. Having witnessed first hand how He works, I know they will be in His time.
Sincerely, and in Christ,
Jeff
Thanks for the update, Jeff.
I am praying for you and your family. You are in the best Hands possible. The very best. But you already knew that. I see the Light of Christ shine through your posts, and it is bright, and warm, and wonderful.
Just like you. God be with you.
Thank you for keeping us informed! Prayers continue...
Prayers continue, Jeff.