Yes, a typo.
Posted on 05/02/2008 4:35:28 PM PDT by decimon
Typso ping! Careful with those limes: they're very acidic, but have almost no vitamin C. You could get scurvy!
I don’t think chronic Lyme is imagined. I had a neurologist tell me that late stage Lyme can mimic MS and that Lyme liked to “hide” (her word, not mine) in the CNS which sometimes made it very difficult to diagnose, and even more difficult to get rid of.
I have MS and I have a friend who has been diagnosed with chronic Lyme. I would say that the difference between our symptoms is that she actually seems sick, as in flu symptoms and joint problems, my problems are strictly neurological.
Do you know if your friend was treated for Lyme in its early stage?
Yes, a typo.
Hyperbaric Oxygen is being used to successfully treat both conditions.
There’s also been some research on autism being misdiagnosed and lyme disease being the culprit. (Dr. Jo Feingold is the researcher I’ve seen, but I don’t have an online source to quote)
Lime Disease AND "inguanal lymp nodes"
The Night of the Inguana.
Acupuncturists have a very classic take on things. “If a person thinks they have a medical problem, then they have a medical problem.”
This is actually a very intelligent approach to diagnosis, and how many new diseases are discovered.
Even when it is obvious that it is all in their head, medical caregivers shouldn’t make the assumption that the symptom is the problem.
For a seemingly silly example, there are the “tin foil hat crowd”. People who have some small variation to the idea that “someone is transmitting messages to my brain”. And almost equally silly, that they generally all believe that if they wear a tin foil hat, it will stop the transmissions.
To a normal person that sounds ridiculous. However, if you examine it in detail, you notice something that should grab your attention: almost all of these people describe the *same* problem, and find some relief with the *same* solution.
Wait a minute.
What are the odds that a whole bunch of people, with no obvious connection, and over a period of many years, would describe the *same* condition, with little variation?
The odds of that happening by chance are very slim indeed.
But then, that they all share the same remedy, the tin foil hat? That should *not* happen. There is “some there, there.”
It is next to impossible for hundreds or thousands of people to have the same problem with the same solution, unless there actually *is* a problem. This means that they share some condition that you are unaware of. The unknown has given you a very big clue.
Because they think they have a problem, they do have a problem. It is highly unlikely that it is what they think the problem is, but it is still a problem, nonetheless.
Now apply this chain of reasoning to some of the medical mysteries floating around today:
Chronic Lyme Disease
Chronic Fatigue Syndrome
Morgellons Disease
etc.
I remember many years ago, seeing the John Travolta movie “The Boy In The Plastic Bubble”, about a young man with a non-functional immune system. It came out in 1976, and was a pretty unremarkable film.
However, shortly thereafter, there started to be more and more reports in the news of adults whose immune systems had failed. There didn’t seem to be any consensus as to why, just that it was happening.
At the time, it impressed me that there was “a there, there”, that it just wasn’t bad luck or coincidence. Of course, it turned out to be AIDS. They just didn’t know it yet.
Today, I’ve noticed that an increasing number of people are also suffering from “extensive allergies”. Often with some kind of chemical trigger, like having new carpets installed, they will suddenly become very sensitive to all sorts of cleaners, artificial chemicals, perfumes, etc. Many have to stay indoors in a chemically-free environment.
But they all seem to have the same symptoms. Fortunately, it doesn’t seem to be lethal, just very annoying and somewhat debilitating. But there are just too many people who have it to think “it is all in their heads”.
Doctors who dismiss such things out of hand are missing the point of the exercise.
It’s real. The spirochete has been identified in dormancy during the post-acute phase. I contracted it in 1978 when I lived across the LI sound from Lyme CT, hospitalized for 1 week and with symptoms that endure to this day, but I usually ignore/tolerate them. Symptoms vary for the chronic state, but usually include an arthritis that can migrate from one set of joints to another. After accommodating my symptoms for years, I was recently given cortisone for bilateral shoulder bursae impingement (aka rotator cuff pain and immobility), not only did my shoulders improve but so did my knees, hips and lower back.
That's true, but most doctors will get the screaming heebie-jeebies if you even mention HBOT, because it almost put the medical profession out of business in the 1930s because it cured everything, and left them without any patients. It's particularly effective for strokes.
That's a condition that large fence lizards get from too much sex. Their testicles swell up and make them limp like Chester.
No, a typo is unworthy of notice. Yours was a true Typso, one of the best I’ve seen in recent weeks.
LOL! I wouldn’t eat inguanal lymp nodes - could catch something really bad.
Okay, what be a ‘Typso?’
Good grief, I'm going sydlexic.
I was diagnosed with MS in 2002, while managing a quarter horse farm in southern CT. Two other employees had the flu-like symptoms etc and were treated with antib’s.. I on the other hand, had numbness in my left foot, for about 3 weeks (which I foolishly blew off as a symptom of an arthritic hip - many horse-related crashes in my day) Other than that I had a general lethargy and sensitivity to sunlight.
One morning I woke up with a headache so bad I couldn’t see, in fact I could not see out of my right eye at all. The hospital tested me for stroke, meningitis, lupus, a whole abc list of “itis”’s.. while pumping me full of prednisone etc.
I said Lyme? they said no. I said Lyme? They said no.
I said I worked with 2 people with Lyme disease, it was April (Hotbed of Lyme activity in CT) and in fact we had a horse at Tufts being treated for Lyme. They said no. They decided after 10 days it was MS, said “get counseling and see a neuro” and sent me home.
What I have since been told about Lyme is, the spirochete aim for deep tissue so when the infection is not acute, you can’t get a titre. I’m not a doc, nor an expert, but this is what I was told, and the ELISA panel didn’t say one way or the other.
My diagnosis was based on multiple lesions and ogliconal banding in my csf.
My current neuro from Yale’s MS clinic doesn’t think I am an idiot, (how refreshing) and says that as much as MS mimics Lyme and vice versa, he wouldn’t be surprised to learn that there was a relationship between the bacterial agent in Lyme triggering latent MS exacerbations in a previously asymptomatic patient, the MS becoming the primary clinical symptom as the Lyme goes into “remission”.
Anyway, my 2 cents. My friends with Lyme and I share many of the same symptoms also.
(Dawn53, if you ever want to yap send a PM. *hugs*)
Another test has confirmed the lyme, as it causes the little buggers to fluoresce under black light microscopy, and can detect them in nearly every liquid that can be drawn from the body. I have seen the florescent spirochete in my test with my own eyes, yet the test is not approved and therefore does not count. Go figger that one out.
Does an antibiotic regimen give you relief? Which antibiotics have you been on?
I was diagnosed with MS early on, but since the antibiotics produce a result, MS is off the list.
Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.