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Parents defend decision to keep disabled girl small
LA Times ^
| January 3, 2007
| Sam Howe Verhovek
Posted on 01/03/2007 1:14:08 PM PST by Lorianne
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To: nmh
Dear nmh,
I just sent you a private email but apparently I was wrong. So let me ask you this question.
My son has an intractable seizure disorder. He has had a corpus calosotomy to seperate the two halves of his brain to stop his drop seizures. He has a vagus nerve stimulater implanted that "shocks" his vagus nerve every five minutes to help control the complex partial seizures that he he suffers from. He also take 3 strong anti-epileptic drugs, LARGE doses mind you, to help control his seizures.
AM I PLAYING GOD BY TREATING MY SON MEDICALLY THIS WAY???
After all, God allowed me to get CMV when I was pregnant with him, that wreaked havoc in his brain and caused all of the brain damage. Am I playing God for seeking any kind of medical help for him?
Do you take any medication?
To: ClearCase_guy
To: nmh
Because the STATE does step in for cases like this.
I'm sure the family has lots of health professional give them the spiel how their daughter could the best care at a local institution. The family does not need to worry about cost since the STATE will help pay.
Its not an entitlement but the STATE must ensure it provides for all its citizens. What do you think happens to people like their daughter when the family dies or can no longer take care of them?
To: nmh
It's just this family's good fortune that you are not God and will never judge them. [The rest of us are relieved, too.]
To: art_rocks
The "best" treatment from the STATE?
Geesh, talk about COLD and heartless ... the best treatment she'll ever get is from people that hopefully love her at home with perhaps some help coming into the home.
45
posted on
01/03/2007 2:56:04 PM PST
by
nmh
(Intelligent people recognize Intelligent Design (God) .)
To: nmh
If God wanted her small, He'd have made her stay that way. Do you disagree with all medical treatment? I'm just trying to understand where you're coming from.
46
posted on
01/03/2007 2:56:09 PM PST
by
Krodg
To: Clara Lou
"It's just this family's good fortune that you are not God and will never judge them. [The rest of us are relieved, too.]"
The above statement, coming from you assures I am making the correct call.
Unlike you, I don't wish to play "god" and keep her small for my convenience. I know what playing "god" is and clearly see it here - btw, He's not impressed with those that like to "play god" either. I know Him WELL.
47
posted on
01/03/2007 2:58:22 PM PST
by
nmh
(Intelligent people recognize Intelligent Design (God) .)
To: nmh
I know Him WELL.
You presume to, anyway.
To: nmh
Would you be saying its sick if a person had an overactive pitutary gland and would have grown to 7'10", and decided to have this therapy done?
49
posted on
01/03/2007 3:02:56 PM PST
by
LukeL
(Never let the enemy pick the battle site. (Gen. George S. Patton))
To: nmh
The above statement, coming from you assures I am making the correct call.
(I intended to overlook this comment, but my curiosity is piqued.) Why don't you tell me, and the rest of the good people on this thread, what I've said or done to you to merit this comment? (For the record, I can't think of a thing.)
To: Lorianne
Pet humans (sick). They should let her mature normally.
Aside: If people are going to mess with stuff like this, they ought to make ALL humans 1/2 their size to save on resources. Think about it: if people were pint-sized, they would eat less, you coulsd fit more of them on a plane, etc.
Of course, the scientists and rulers would find a reason to keep themselves normal sized. There's a modern Gulliver story there someplace.
To: nmh
NO! You misunderstand their intentions. They aren't doing it for the convenience of the family at all. By keeping her small she can have a better quality of life than if she were in an institution, which would be the reality.
I thought it was sick, until I read the entire piece and THOUGHT it through. This poor child is NOT the usual handicapped kid that can sit in a wheelchair and interact.
To: georgiagirl_pam
You and your son will be in my prayers. I totally admire you for all you are doing. I don't know how I would handle something like this, I did deal with my mother through dementia and it was really hard. She was like a child and I had to finally put her in a nursing home when she became out of control and was a danger to herself and others. God Bless both you and your son. ~~Pandora~~
53
posted on
01/03/2007 3:21:35 PM PST
by
pandoraou812
( zero tolerance and dilligaf?)
To: oneamericanvoice
Oddly enough, I don't see those who believe they are fit to judge this family offering any assistance to them.
Unless you count a priggish tirade as "assistance".
54
posted on
01/03/2007 3:41:14 PM PST
by
A Balrog of Morgoth
(With fire, sword, and stinging whip I drive the RINOs in terror before me.)
To: Lorianne
Some say it's also a violation of the medical oath: First do no harm. Unless you want to rip someone from the womb, limb by limb. Then all bets are off.
I have an aunt, 70 yrs old, who has cared for her severely disabled son all his life. He's now 35. Circumstances and time have finally converged to the point where she is living with another relative and getting help, but the sacrifice that woman has made for her son is immeasurable. The physical toll is unimaginable, much less the emotional one. I find it hard to fault these people.
55
posted on
01/03/2007 3:46:12 PM PST
by
workerbee
(Democrats are a waste of tax money and good oxygen.)
To: 6323cd
56
posted on
01/03/2007 3:50:14 PM PST
by
Dr. Eckleburg
("I don't think they want my respect; I think they want my submission." - Flemming Rose)
To: nmh
the best treatment she'll ever get is from people that hopefully love her at home with perhaps some help coming into the home. Yeah, it all sounds so nice and neat and easy on paper, doesn't it?
57
posted on
01/03/2007 3:54:55 PM PST
by
workerbee
(Democrats are a waste of tax money and good oxygen.)
To: Lorianne
Wow. The decisions some families must face are enormously difficult and complex. I am in no position to judge and can understand the concerns from all directions. There is one thing that appears certain however...her family loves her and is doing what they believe will give her a good quality of life. And that is all I need to know.
To: teenyelliott
I think anyone who is not in their position has no right to pass judgment.Spot on
Walking in another person shoes always makes one develop astounding clarity.
59
posted on
01/03/2007 3:58:50 PM PST
by
Popman
("What I was doing wasn't living, it was dying. I really think God had better plans for me.")
To: nmh
And I say you are wrong, wrong, wrong. They want to continue to be able to care for her. She won't know how tall she is, or how much she weighs, and won't, and cannot, care. Nor does it matter. What DOES matter, is that she be able to be kept at home with people who love her caring for her, as long as possible.
You really need to rethink your position on this.
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