Skip to comments.Girl dying of cystic fibrosis to receive lung transplant (Update at 74, Successful)
Posted on 06/12/2013 8:47:28 AM PDT by Zakeet
Sarah Murgnahan, the 10-year-old girl dying of cystic fibrosis, is getting a brand new pair of lungs.
(Excerpt) Read more at foxnews.com ...
Cystic Fibrosis is killing Sarah, not Sebiulis. If she lives another year and I hope that she does, she will beat all odds.
> Question... what is the prognosis after lung transplant?
> Is she then cured, or does this come back?
One anecdotal data point:
I know a family with a lovely young teenage girl with CF. She got new lungs. Survived another year or two. Died a high school teenager.
God bless all the families dealing with this.
Bless this girl, her family and the hands of the surgery team.
Yur not alone.. I’m borderline a list or two myself.. I’ve had an easier ride to the precipice than many.. Some who speak so crassly can trust their luck and genes they never do.. and let it go at that, and then some.. wellll.
They say no one can really appreciate life and its preCiousness until you come close to losing it or know the odds are steep and could come at any time.
Amen to that. Public policy by anecdote and feelings. Ugh.
That was my concern. I appreciate the mention.
Gotta be better than what she currently has, glad she's getting her life back and sebelius can go pound sand.
What I read this week was that cystic fibrosis also compromises other organs so the prognosis is good for about 5 years only
Prayers for her, her parents and the Doctors hands. God you have worked a miracle thus far and you get all the praise and glory, thank you for opening every shut door. We ask that all goes well with this operation now for your glory. In Jesus name Amen
Thanks for the mention. I had wondered and this seem to be the case.
I wish everyone the best and more that has ipf. My oldest brother was diagnosed two years ago this month with it, and we lost him a short two weeks later. The experience brought home to my family just how precious life is, and going through the experience, learning about ipf and other illnesses, several in our family decided to become donors.
Such a cutie! Prayers for her and the family.
Comes back, but it’s a new start. I have a friend who had a lung transplant about 10 years ago - still doing okay.
“The only people the left wants to keep alive are murderers in prison on death row.”
And they are eligible for transplants, too.
The minute I heard this story on my car radio this AM, I said “Thank You, God.”
Thanks Wicket. I appreciate the mention.
Goodness, I want this child to live desperately. But CF is deadly. Suppose she does, or lives for only a short time?
I fear that would have Sebelius et al looking like they were right.
Good bless this little girl.
He had been going to doctors and getting diagnosed with ‘pneumonia’ for about 2 years. They would do rounds of antibiotics and such and say he was fine, then it would happen again. He was a heavy smoker and we think that may have camoflauged some of his symptoms. He also had md which may have been what they excused some of his issues with. It wasn’t until he went to the er with what they called a heart attack that they realized there was something a lot worse wrong with him, his heart was fine, not so his lungs.
Prayers sent for the child Sarah and also for her family, the donor and the donor’s family.
Surgery is over and it was a success..Sarah is in ICU and the doctors had no issues during the operation which started at 11am..God Bless Sarah and her amazing family..she has a long road ahead of her but she is a fighter
Thanks for the update. God is good.
If she’s at Children’s Hospital, she couldn’t be in better hands.
Just saw the update on twitter so thought I would pass it on..and God bless the donor family, it could not have been an easy decision but now this beautiful child has a chance to do something we all take for granted and that is breathe
Yep. They put her ahead in the line because of public outcry which is troubling. However one could argue she should have already been waiting for quite a while had that done this right to begin with. so it probably evens out
The little girl may not live long, but I think it will advance the science behind lung transplants.
Also, this little girl is the size of many 12 year olds, the cut off point for adult organs. I think size is more important then chronological age, and were she put on the transplant list earlier, as I think she should have been, I think she would have been near the top without outside interference or publicity.
I wish you the best.
CF will effect the new lungs as well. I had a childhood friend that lived a lot longer than most but lost his life in his late 20’s.
May she outlive Katherine Sebelius.
And folks in here who don’t want politicians making the decisions on who lives or dies are outraged at Sibelius for not doing just that exact thing,,,appointing herself as a one person decider panel on behalf of Sarah. Makes sense to me! sarc/
Thank God! Children are not 2nd class.
I wish well for Sarah, but now because of the medias intervention, some faceless person we will never know has been demoted to 2nd class citizenship and will have to die.
Oh, oh. Hannity is OUTRAGED that Sibelius didn’t appoint herself as a one person decider panel on behalf of Sarah.
Thank you lord for this amazing miracle! Please also bless and comfort the family and soul of the one who so generously gave the gift of life to a stranger.
Sarah is a little fighter, she fought til the lungs arrived..she was in a coma when she got these miracle lungs, she was at death’s door and a miracle brought this organ to her..the family of the organ donor deserves special praise, thank you donor family for this special gift and RIP To your loved one, he or she lives on in Sarah
And it doesn't hurt to have God on your side either. :)
A true miracle indeed, and the world as witness!
I add my thanks to yours to the donor family.
Nobody wanted Sebelius to decide whether Sarah lived or died. What everyone wanted was for Sebelius to examine an arbritrary policy rule that denied all children under the age of 12 an opportunity to live. Sebelius wouldn’t do that. She stood on an arbitrary policy rule and claimed it was science.
No one wants bureaucrats to decide who lives and dies. We want them to stay the hell out of the way while we make our own medical decisions.
The cf in her lungs won’t come back, but the normal life expectancy for a lung transplant is 5 to 10 years with a few making it to 15 years or so. It’s possible she could have problems with the other organs cf effects.
Amen to that. Glad this little girl got her lungs, but she was told yes that another person who never got media attention would not.
Lord, comfort and heal that individual. Reward his or her patience.
Calling the surgery part of a transplant “successful” is misleading in the extreme.
The actual, physical transplant is very easy, and almost never “fails”.
It’s what happens after that’s a problem - in the case of lung transplantation, a very, very big one. The five year survival is 55% and the ten year survival is only 30% - these numbers have not moved at all in the last ten years or so.
And needs to be repeated. Sebelius’ hands were tied. Her mouth wasn’t. She should have been out front calling for a change in what is a very arbitrary policy (making decisions strictly on age, to the exclusion of other and relevant factors).
Yeah, I expect politicans to keep themselves from intruding on a lot of things, but I also expect that they will speak out, especially on moral/ethical issues like this.
Thanks AlmondJoy. Sorry about your friend.
Thanks Whershay. I appreciate the response.
Rhetorical question: now that we have Obamacare why is even on problem here?...