When it’s government socialized medicine, rotsa ruck to doctors who buck. Doctors are really glorified bean counters in this model.
And the pharma company? Here is my guess: they HAVE to stand pat, or else they won’t get a livable income (consider the cost of all the research it took) off of the medicine even from people who could pay. It’s all ugly politics. My guess is that if it were up to the pharma company’s druthers alone, they might well support a lot of charity cases. The secular left hates charity; it tries to subsume the role of charity and does it very badly.
I have heard that far less than 1% of all drugs ever make it to market. A rare drug like this is also expensive because it takes up production space which could make millions of pills that treat high blood pressure or another common ailment, which they could sell at 10 cents a pill and still turn a profit.