Interesting. Don’t know what will be accomplished by findings from the eye scan...or as to the course of the disease how that will change things. Since nobody knows how they’ll react to any given drug therapy, and nowadays with the newer therapies, the possibility of serious complications exist, it’s still a guessing game.
A fascinating link that shows a single MRI is just a snapshot in time of the brain of an MS patient...the lesions are constantly coming and going through the course of a year in these time lapse MRI sequences...interesting thing, the MS patient did not have a relapse or suffer any increase in symptoms.
http://www.msdiscovery.org/news/news_synthesis/322-more-meets-eye
And on a more discouraging note, from someone who’s shot up Betaseron for the past 9 years...it may slow down the number of exacerbations but does nothing to alter the progression of disability to EDSS 6.
http://jama.jamanetwork.com/article.aspx?articleid=1217239#RESULTS
In my many years with MS it seems that the next “big gun” to treat the disease is always just around the corner. However, once it appears on the scene, the disappointments are valid:. Tysabri and PML plus rebound once it’s stopped, Gilenya and heart problems, even sudden death.
At this point they’re still not sure what causes the disease or if we’re even dealing with the same disease when the course can be so different from patient to patient, type to type. Another interesting article from an MS blogger about diagnosis :
http://www.wheelchairkamikaze.com/2011/02/misdiagnosis-of-multiple-sclerosis-and.html
Richard Cohen says “Progressive diseases progress”...and Neil Cavuto says what he hates most about the disease is it not a “quid pro quo” disease, you just never know what’s going to happen...he says one day he can walk, but the next day he may not be able to get out of bed. So we keep on keeping on. I’m just disappointed they haven’t made more progress...and slightly jaded because why try to find a cause and cure when you can charge the patient/insurance $3K to $7K a month for the treatment (depending on which drug you take)...and everyone just crosses their fingers and hope it’s doing something
Thanks for posting the link.
There is a very humble substance that I have heard can help:
Bieler’s broth. It is made from zucchini, stringbeans and celery. It must be consumed every day to be effective.
My wife has been enduring MS for over 20 years and has been on many of the typical therapies (Avonex, Copaxone, IVIG) and, as you pointed out, the disease still progresses. She is about to start Abagio. Do you have any experience with that?
My wife has been enduring MS for over 20 years and has been on many of the typical therapies (Avonex, Copaxone, IVIG) and, as you pointed out, the disease still progresses. She is about to start Abagio. Do you have any experience with that?