Currently my husband is suffering from peripheral neuropathy probably caused by a drug that he took years ago.
There is no other reason for the neuropathy that they can find.
So I am in favor of long term testing. However there comes a time when you are going to die and a not yet fully tested medicine may keep you alive a bit longer. You should have the option of volunteering to be give that drug if you are willing to take that chance.
I agree with that. There are terminally ill patients who cannot tak drugs that are not approved. That makes no sense.