Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Prayer reminder...procedures/surgeries are here...
It’s been a while since I checked in...mainly because typing hurts me now with my hands failing. I have a test on my neck and middle spine tomorrow, it’s a CT Milogram, they will inject dye into my spine at the neck and thoracic area and then take CT scans to evaluate the condition of the spine in those areas. The reason for this is because they think I have more bulging discs and that is what is making my hands hurt and quit working as well as my left arm. I can’t even get back up the ramp at my house anymore on my own...so if nobody is home to help me, I can’t leave the house. I can’t check the mail and I can’t sit in the yard to enjoy a nice day.
On Monday, I will be having surgery to remove an encapsulated tumor from my abdomen. I am going to be so happy to have this gone as I can’t eat many things, small portions only or I risk getting sick...sometimes I get sick even if I eat NOTHING...the tumor makes it feel like I’ve been stabbed by a hot icepick, my abdomen feels like it’s on fire and the pressure is intense...it hurts so bad that my face goes flush and I have to hurry for the pink hospital bucket or I risk having a mess to clean up. Prayers are apprecaited, I just want my hands to work again or for them to decide to give me something electric to get around on so I can leave the house on my own.
Prayer Eagles BumP!!
Prayers continuing, t!
Good luck with Monday’s surgery. It’ll be one thing down, at least. And, I do hope they get you an electric chair soon. You need the freedom it will afford, the sooner the better. And, of course, we want them to fix your hands so you have that personal relief of pain and use of the hands for typing and the countless other things we take for granted that are done by the hands.
Prayers for you trussell, I am so sorry you are having to go through all this.
Prayers continue.
Lord Jesus Christ, hear Thy servant in her pain and make the surgery a success, and grant her complete healing.
In the name of the Father, and of the Son, and of the Holy Ghost we pray, amen.
Amen
Prayers up up up
I’m so glad you’re getting the care you need. Prayers for successful procedures, lessening pain, and improved function.
IF they won’t prescribe you an electric dhair, you can buy one pretty cheap on ebay.
continued prayers up...
UPDATE from trussell.....surgery tomorrow. Prayers, please.
http://www.freerepublic.com/focus/chat/3112724/posts?page=721#721
Thank you all so much for the continued prayers. God Bless you all!
Unfortunately, that isn't an option until at least when they approve my disability. I just got the denial on my birthday (April 30th)...the appeal should be filed by tomorrow or Monday, but it will still take at least 2 months and as much as a year to hear the next decision. I'm praying for a quick, favorable decision. There are so many things I need that I can't get until I get my disability.
Prayers that the abdominal surgery goes well.
Thank you so much Salvation...my biggest fear is the thing tomorrow...the needles in my spine, in my neck. If they dont put me out, I will be shaking so bad and I think that’s what went wrong that made me start falling several months ago...they were doing a cortizone shot and refused to put me out like they had always done before, so I was shaking while they were sticking the needle in...I fell nearly every day after that, even after I started using a cane.
Hope and pray this will put you on the road to a total recovery. You deserve a wonderful life:)
God bless you, trussell.
You will be lifted up for your needs in my prayers, T.
Our Lord willing, you will have some relief soon.
Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.