Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
I have an appointment with my neuro surgeon again...tuesday, to talk about the cervical disc, the hands and the left arm. I have to get with him to get the diagnosis. He will probably have me go through tests for the carpal tunnel just to rule it out (or not). I tried to buy the traction unit and was told I would need a script even getting it from an ebay sales. Some of them have disclosures that say “if a prescription is required to own this product, you will be expected to provide one after winning the item”. I can’t seem to win for losing! :-/ Grrr!
Sure wishing I could get it...I need relief. I’m just so dang tired of the pain.
Another issue...I had failed to test my PT and INR for my blood thickness since my last surgery. I got it tested the other day at my lung doctor’s office and it was extremely elevated. Normal for being on bloodthinners is 1 ... mine was at 4.9 I’m not suppose to be cutting anything or handling anything that could cause a cut, a hole or a bruise. Yet I have to cook, and that means cutting the chicken, peeling the taters and dicing them.
Still waiting for the disabiility decision. It’s still with quality control. They are past the date I was told was normal. They got it on the 25th of March, they are suppose to have it for approx 2 weeks. Yet I’m still waiting. :(
Prayers appreciated.
Prayers up!
Lord Jesus Christ, ease the suffering of Thy servant.
In the name of the Father, and of the Son, and of the Holy Ghost, amen.
Prayers up!
Talk to your physical therapist about the scrip. They should be able to get it from the doc.
The doctor’s nurse said that even if I saw the doctor and he agreed it was the disc causing trouble, he would NOT just jump to a traction unit script. I told the nurse I was seeing home physical therapist and SHE wants me to have a traction unit, the nurse said to come in Tuesday and the doctor would make contact with the therapist and see if he could help.
Prayers that it turns out well.
Here’s prayerfully wishing some good news shall soon start to come your way. Your sure going through a lot.
I’ll continue praying for you.
I hope and pray that you catch a break very soon. It’s just been too much these last few years!
Also hope that disability comes through sooner rather than later. If you were illegal,........IJS.
Prayers lifted on your behalf FRiend.
May God bless and keep you and yours.
Tatt
Good luck with all that, trussell. Praying that God will make you entirely free of pain .
Thank you for posting an update.
Prayers up!
Thank you for keeping us informed. Prayers continue...
Bless you, brother
(((((Heartfelt Prayers, Sweet FRiend)))))
BTTT
continued prayers
Still praying for you to get what you need and feel better momma. Please just be careful and ask little man to help with what he can.
Prayers up!
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