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Updating my medical condition and prayer needs [Update at #'s 843,721,643,910]
1/17/2014 | trussell

Posted on 01/17/2014 6:14:56 AM PST by trussell

I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!

Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!

Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.

Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.

Please, keep up the prayers. I appreciate them so much!


TOPICS: Chit/Chat; Daily Prayer; Miscellaneous
KEYWORDS: medical; prayer; spinalcordstimulator; trussell
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To: trussell

Will keep you in my thoughts and prayers.


501 posted on 04/05/2014 11:46:19 AM PDT by mouse1
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To: trussell

May God’s best yet to be bestowed upon you. Hopefully a home traction unit can be found.


502 posted on 04/05/2014 11:57:22 AM PDT by Marine_Uncle (Galt level is not far away......)
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To: trussell

12:30 PM Eastern. Got it covered. : )


503 posted on 04/05/2014 12:05:58 PM PDT by BykrBayb (Wagglebee please come home we miss you! ~ Þ)
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To: trussell

So glad you will have all of that prayer power working for you. You know that we FReepers will be joining in. I will be a Mass at that time, so I will definitely lift you up in prayer.

Thanks for the update.


504 posted on 04/05/2014 2:18:23 PM PDT by Bigg Red (1 Pt 1: As he who called you is holy, be holy yourselves in every aspect of your conduct.)
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To: trussell

Hi, t! Will set alarm to join in prayer tomorrow!


505 posted on 04/05/2014 3:37:17 PM PDT by Silentgypsy (Make sure she doesnÂ’t get ahold of the gom jabbar)
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To: trussell

God Bless and keep you in His Grace.


506 posted on 04/05/2014 4:20:29 PM PDT by CorporateStepsister (I am NOT going to force a man to make my dreams come true)
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To: trussell

If you want to reduce weight (with absolutely zero exercise) I can’t recommend the “juice fast” enough. I’m 5 days into it, have barely felt hungry and not weak at all, and have dropped 13 pounds. My fiancee and brother are having similar results. This was all inspired by the movie “Fat, Sick and Nearly Dead”.


507 posted on 04/05/2014 7:50:25 PM PDT by The Duke ("Forgiveness is between them and God, it's my job to arrange the meeting.")
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To: The Duke

I would love to do something to lose weight but I can’t afford a diet regimine at this time. I’m not sure I’ve seen the “Juice Fast” diet, I would definitely be interested when I have an income, could you send me a link or some additional information on it? Thank you!


508 posted on 04/06/2014 3:28:52 AM PDT by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
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To: trussell

READ THE SIDE EFFECTS
http://www.rxlist.com/lidoderm-side-effects-drug-center.htm

With your health I’d advise against it.

Flector Patch is pretty much the same, USELESS to boot. Neither have enough adhesive to attach properly. COLD too.

Suggest Hot Hands, the small ones 8 hrs of heat in a portable heating pad. BUT IT in a pot holder pouch, so skin does not burn. IF you can still find them. Might have to go Amazon to get. Local Walmart’s sold out due to extreme cold weather.


509 posted on 04/06/2014 6:53:33 AM PDT by GailA (IF you fail to keep your promises to the Military, you won't keep them to Citizens!)
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To: trussell

Lyrica anti-epileptic http://www.rxlist.com/lyrica-side-effects-drug-center.htm
50% SIDE EFFECT FAILURE RATE
Often used beside Lyrica.

Gabapentin Side Effects anti-epileptic
http://www.drugs.com/sfx/gabapentin-side-effects.html

Savella http://www.rxlist.com/savella-side-effects-drug-center.htm

Cymbalta mind fogging, fatigue joint & muscle pain
http://www.rxlist.com/cymbalta-side-effects-drug-center.htm

Xanax mind fogging, fatigue, joint & muscle pain

http://www.rxlist.com/xanax-side-effects-drug-center.htm


510 posted on 04/06/2014 6:56:35 AM PDT by GailA (IF you fail to keep your promises to the Military, you won't keep them to Citizens!)
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To: trussell
Here's a link that will introduce you to the "juice fast" diet:

http://www.fatsickandnearlydead.com/

I've dropped 13 pounds over the past 5 days with absolutely *zero* exercise and very little hunger. You don't necessarily have to have a juicer to do this, you can use a blender and then strain the blended fruit and veggies through cheese cloth to get the juice.

What totally amazes me is that, even though I've not eaten solid food for going-on-six days, I've not been hungry (except when it's time to drink juice, of course) or weak.

Your cost of fruit and veggies will cost you between $120 and $150 per week, but of course you can deduct what your food costs have been.

511 posted on 04/06/2014 8:41:28 AM PDT by The Duke ("Forgiveness is between them and God, it's my job to arrange the meeting.")
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To: All; 4woodenboats; abletruth; Accountable One; Aeronaut; AKA Elena; Alamo-Girl; AlGone2001; ...

Well, I’m past due to give you all an update. It’s getting harder for me to type so I’ve tried to get through this several times and have to put it aside and try again after the pain goes down enough to use my hands again.

The prayer at the church was very nice. Hands on, loud prayer, I heard one person speaking in tongues and another (I could have done without this) kept jerking me/pushing me back and forth. That was hard on me and I almost cried from the pain it was causing. They took me for brunch after the prayer and it was nice having the companionship of other believers. I sure found out how much the pain comes on like gangbusters if I am in this chair for too long. At least at home I can transfer out of it...but I couldn’t while I was away from the house.

My home health therapist is very nice and tries to be gentle. Some of the moves she forces my hands to make are more than I can take. I definitely have the tears come on like gangbusters. She does a form of traction on my neck. She tried to get me a traction unit for use at home, but my insurance won’t cover it. She said the best would be the traction unit that is used while you lay down, but that one costs about $300 from a medical supply store. I showed her the link for the over the door unit mentioned in post 500 and she said that one would help if I couldn’t get the other, but still, my insurance won’t cover either one. She was upset that my insurance can deny me something that my providers say I need, but there is nothing she can do to change it.

I am impatiently waiting for the results of the ultrasound on my abdomen and the xrays on my hands. They said the doctor should have the results today. I can almost bet it will be a week before they let me know. I hate waiting.

Anyway...thank you all for the prayers.
God bless you all!
T


512 posted on 04/14/2014 10:00:37 AM PDT by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
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To: trussell

You should have punched that “gawdly” poseur in the mouth for using you to validate his existence and give meaning to his life.

Jerk.

You’ll be fine. God will heal you and we still pray for you.


513 posted on 04/14/2014 10:08:19 AM PDT by Vendome (Don't take life so seriously-you won't live through it anyway-Enjoy Yourself ala Louis Prima)
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To: trussell

Prayers for you and your family.


514 posted on 04/14/2014 10:08:51 AM PDT by Responsibility2nd (NO LIBS. This Means Liberals and (L)libertarians! Same Thing. NO LIBS!!)
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To: trussell

When it comes to your medical care and rehabilitation you have to push and push and push until they do the right thing and provide you what you need.


515 posted on 04/14/2014 10:11:08 AM PDT by Vendome (Don't take life so seriously-you won't live through it anyway-Enjoy Yourself ala Louis Prima)
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To: trussell

continued prayers up for you.


516 posted on 04/14/2014 10:13:16 AM PDT by Secret Agent Man (Gone Galt; Not averse to Going Bronson.)
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To: trussell

BTTT


517 posted on 04/14/2014 10:35:05 AM PDT by E.G.C.
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To: trussell
I earnestly hope the many prayers lifted up to our Lord shall lead HIM to provide the care you require which might lead you in getting back on your feet, without all the pain you are going through.
We collectively hold you up in prayer for HIS healing hand to come down upon you. In Jesus' name amen.
518 posted on 04/14/2014 10:35:34 AM PDT by Marine_Uncle (Galt level is not far away......)
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To: trussell
Prayers still up trussell and will be continuing.

FMCDH(BITS)

519 posted on 04/14/2014 10:38:56 AM PDT by nothingnew (I fear for my Republic due to marxist influence in our government. Open eyes/see)
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To: trussell

continued prayers


520 posted on 04/14/2014 10:45:58 AM PDT by aimee5291
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