Thank you. The doctors involved did everything they could. They thoroughly explained the criteria & shared all results with us. We had the added benefit of having an MD in our family who was allowed to observe and review all testing.
Even then - it is a very difficult thing to “let go”
So when I see stories where the patient doesn’t quite fit the criteria - I feel for them.
Hope may seem foolish to others - but when it’s your child, you want to give them every possible chance - no matter how remote.
May I ask how old she was?