CDC mystery disease study heads toward finish line (Morgellons)

The Sunday Paper ^ | Sunday, August 03, 2008 | Spencer Freeman

[Scythian]

Karen Wells, a registered nurse in Indiana, has suffered from Morgellons since 2005 and, she says, lost a friend to the disease in 2004.

“Everything is so uncertain, but is does kill,” she insists. “I have seen [Morgellons disease] kill not just my friend, but in the hospital where I work.”

Wells, who works in a neurology unit, says that she sees Morgellons lesions on patients who don’t know they have it. The lesions are sometimes accompanied by cognitive symptoms such as anxiety attacks, panic and nightmares, she says.

[Scythian]

I fully expect they'll find nothing, they only received 300k for the study, less than the price of a crappy home in California. Add to that the fact that Kaiser has already told 100's of suffereres that they are insane would it would take real courage to admit they told hundreds of very sick people to hit the road and that they were not only wrong, be negligent. However, this is just the beginning, not the end ....

[ClearCase_guy]

A lot of folks think that this is just “delusional parasitosis”. If so, the statement that “The lesions are sometimes accompanied by cognitive symptoms such as anxiety attacks, panic and nightmares” would not be surprising.

[Aggie Mama]

I think I’d have anxiety, panic attacks and nightmares if I were sick and no one could tell me what the heck was wrong with me!

[Scythian]

DOP is an extremely rare diagnosis, if you do the research, you'll see it an almost non-existant condition. I have Morgellons, I have managed to get myself somewhat better and am able to work, I assure you it is very real, frightening, and bizarre. I was near death at one point, but hung on for dear life.

[Red Badger]

Are you ‘gellon?...........

[autumnraine]

Especially if worm/thread like “creatures” were growing out of you!

I’d have panic attacks a plenty.

[Scythian]

I am beyond the horror, which took two year, it’s something you stay on top of or die from, so no, not really.

[mpackard]

How do they (docs) explain away the lesions with the fibers coming out? Since the very first time that I saw pics of this disease I’ve been disturbed by it. I’ll pray that they one day find a cure and that until then you are able to manage it and find peace and happiness.

[Rudder]

Morgellons is more likely a mental disorder than a physical one.

[Scythian]

Thank you so much, most just like to make fun of it. It’s not just “being sick” but having something that is also extremely frightening. My health is pretty good right now, it comes and goes, I’m one of the lucky ones though, there are good support groups out there without them I would have perished for sure, I cannot begin to explain what has happened to me. I’m past the anger, fear, and just enjoying watching my children grow up, everyday that I wake up and feel half way normal I am so greatful, today is one of those days.

[Aggie Mama]

No. I guess I’m just sympathetic. I have “fibromyalgia”. It took several doctors and lots of diagnoses of “depressed” before I found a doctor that could treat me (low thyroid issues).

[Eepsy]

I don't know why I keep reading these Morgellon's articles, they always leave me itchy....

[mkjessup]

Morgellons is more likely a mental disorder than a physical one.

And what do you base that expert diagnosis on Dr. Rudder?

[Rudder]

Training, education and years of experience treating these kinds of disorders.

[Shion]

>>How do they (docs) explain away the lesions with the fibers coming out?<<

Lint.

[mkjessup]

Training, education and years of experience treating these kinds of disorders.

That's very interesting. How many actual cases of Morgellons have you treated or consulted on? Could you perhaps explain the pathology that results in a mental disorder producing lesions, physical fibres and the like in the victims?

If Morgellons is truly a psychophysiologic illness, what medications would you view as being appropriate?

[evets]

Could be worse...

[Scythian]

mkjessup, don’t waste your time on him. I am very sane, a professional, married with children, respected in my field, and yes, I have Morgellons. I don’t know what the root cause is, but more and more folks report in on the forums all the time, and tons are suffering and have no clue there are others like them. You should hear the testimonies when new folks find support, what a relief, I am not alone. More than a few on our forums have died, we are quite sure Morgellons was the main contributing factor, it really takes a toll on your health in all areas.

Some things really help, keeping your body Alkalin, Anti-Fungals (natural things not pharmasuiticals), Anti-Bacterials like colloidal silver, oregano oil, and many other things, oxygen such as Opaline Oxy, excercise, colon cleanes, and yes Anti-parasiticals, especially ivermectin.

I believe the CDC could find the root cause if they truly wanted to, there is a lot of political strife over this in the CDC, there was much politics in action to try to quell the study, it got a measely 300k, imagine that, for a study in California?

[Scythian]

Oh, one more thing, many of the anti-depressents end in “azole” which are anti-fungal, and many think that Morgellons at the core is fungal in nature. I would not be one bit suprised to find out that anti-depressents ending in “azole” help because they kill fungi and not restore some mythological imbalance in the brain. By the way, Fendbendazole is a dewormer, turns out to be one of the most powerful killers of fungi, even treating microsporidians. We have learned alot on our own, because we’ve had to.

[Harrius Magnus]

No credible medical or public health association has verified the existence or diagnosis of ‘Morgellons Disease.’