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To: Saundra Duffy
Same with my son a twin bed with rails cannot contain someone with severe CP.

We use a King water bed.

He tried some independant living but it was to unsafe.

I have a twin bed set up next to his bed so if he pulls the sheet over his head, trach he has someone to rescue him.

Can't wear shirts to bed I use small baby blankets to cover his chest with flannel lounge pants and the mist and o2 machines keep the room warm along with his studio light above the bed.

People just don't get! Round the clock care means around the clock. Literally.

The trolls are part of society that will never get it.

They themselves are termeninal. Reminds me of liberals and the density of their ability to understand simple issues.

Praying for Teri.

I don't know about other careproviders around FR but hanging out on Teri threads is very painful and incites such anger.

Hope Teri is doing well.

This is all her guardians doing as so many of these cases.

I do not ever see this case as a "slippery slope" regardless of the outcome because their are so many of us who support and care for the severly disabled that we would kick ass when it comes to our loved ones.

Evil will never outweigh all the good careproviders.

Don't make me go manic on your candy asses. I would defend my son and that means I would hurt anyone who messed with us all in self defense of coarse.

Hang in their you guys.
280 posted on 11/04/2003 9:28:12 PM PST by oceanperch (Respite care, it is a good thing.)
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To: oceanperch
I know, oceanperch, that these threads incite anger in you, and that is understandable.
To any trolls who doubt her knowledge as a parent/caregiver of a dependent person, she has much to contribute, having real-time experience!!!
I met her in person, and it is amazing just to observe her tender demeanor with her son, caring for him completely.
You can see the love there, more evident and a little different than ordinary people.
She can give doubting people a side of this issue, from the caregiver's position, what it means, they are the ones on the front lines who should have a huge input into decisions, they are the ones with FIRSTHAND, EYEWITNESS, upfront, INFORMATION!!!!!
It's a shame those who are so selfish in their views, even though we have the right to state them, that their eyes are blinded from the facts.
They just keep on repeating the same media mantra, and the old Lenin quote of telling a lie often enough gets believed,is so true,as we witness here.
I always try to encourage or challenge people to "seek and you shall find the answer", instead of just making rude claims against people's religion.
We are truly blessed to have the information "highway" for resources, I just think a lot of people haven't yet come to that realization of the value of it.
294 posted on 11/04/2003 11:23:42 PM PST by oreolady (Have you reviewed your living will lately?)
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