I know nothing about MG, but prayers up for you.
My dad has a mild case and has had it for about 5 years. He’s over 80 and I think they gave him medicine for it that keeps it under control. It’s not noticeable.
Just curious... Did you, or do you smoke?
My mom has it, but it’s mild and completely controlled with medication.
One well-known figure who suffered from MG was Aristotle Onassis.
Praying for you to recover, which is certainly possible now, given the better understanding. Outlook is good for most people.
I hope you get better, but just curious what your diet and exercise situation like?
I have an aunt that was diagnosed with it about 30 years ago. She treats it with meds, is now 91 and still enjoys gardening during the spring and summer.
Had it for appx 35 years, but think it started as far back as high school ( I am 73). Mestinon, Plasmapheresis , IVIG can keep it generally under control. Impact on breathing is a significant issue. I have stopped breathing at night more than once. Weakness is a constant along with muscle pain, and flair-ups can put you down for a while. But you can make it. Check out the MG group on Facebook. Good luck
It seems all too common for people to post their personal maladies on a political discussion website. Well let me tell you about my hemorrhoids. I might sound unsympathetic but isn’t there somewhere more appropriate to tell people about your arthritis? How about Facebook. That is what Facebook is for. They will kick you off for a political opinion but not for having an illness. We are here for political opinions. You should join a support group if you need someone to talk to about your parkinsons.
My mother in law had it with extreme weakness of the muscles in her neck. She would hold her hand under her chin to hold up her head when speaking with someone.
She did not have the drooping eyelids, but did have difficulty swallowing.
If AChR antibody test results are normal but a healthcare practitioner strongly suspects myasthenia gravis, an anti-MuSK (muscle-specific tyrosine kinase) antibody test may also be ordered.
People with MG often have an enlarged thymus gland and may have thymomas (typically benign tumors of the thymus). Located under the breastbone, the thymus is an active part of the immune system during childhood but normally becomes less active during the teen years. If a thymoma is detected, such as during a chest computed tomography (CT) scan done for a different reason, then an AChR antibody test may sometimes be used to determine whether the person has developed these antibodies.
Good luck! It has been around for awhile.
Robert Heinlein wrote a short SF story about MG in 1942:
https://en.wikipedia.org/wiki/Waldo_(short_story)
“essence of the story is the journey of a mechanical genius from his self-imposed exile from the rest of humanity to a more normal life, conquering the disease myasthenia gravis as well as his own contempt for humans in general. The key to this is that magic is loose in the world, but in a logical and scientific way.”
https://www.earthclinic.com/cures/myasthenia-gravis.html
there might be some good info and guidance here for you. Earth Clinic focuses on the natural CURES of disease. Typically, the mainstream medicine (very similar to mainstream media) only focuses on covering up symptoms
My husband was diagnosed with MG over 10 years ago. Those early symptoms seemed like heat exhaustion or heat stroke. So draining of energy. He suffers mostly losing strength in his legs and it is very difficult climbing steps. We believe he got this as a latent development from Agent Orange exposure in Vietnam. So the VA treats him for this condition.
Lately, he is backing away from taking medication that prevents his build of antibodies. This autoimmune disorder means the antibodies attack the cells carrying signals to flex muscles. But so far it hasn’t made things worse for him. He is in his mid 70s. He does take a medicine that gives you more stamina throughout the day. He sure misses riding his motorcycle!
Prayers up for you to find the perfect prescription that keeps MG at bey.
Sorry to hear you have this. Take heart. My uncle who was a backseater in a USMC F4 in Vietnam flying out of DaNang contracted brain cancer and is now down to about 5% of what he is used to doing. It could be worse and we are all getting older and weaker with age, but Im happy to hear there is a FR group for your malady! :)
Prayers up for you Brother!
Thank you for your service.
MG can also be associated with tumors of the thymus - and in those cases may respond to removing the thymus. MG-like syndromes can also be caused by or associated with other disease states.
There are a lot of treatment options, but just make sure they aren't missing anything, and that they are aware of all the best treatment options for you. You can do very well, but just remember that doctors aren't all interchangeable. Some are great, some aren't.
My best to you. I am sorry you're dealing with this, but you really can do very, very well - so stay optimistic and do your homework.
This might be of help.
https://my.clevelandclinic.org/health/diseases/17252-myasthenia-gravis-mg#management-and-treatme
From the outside looking in they are very similar. One difference, though, is that MG seems to have more variety on how hard it hits someone. The good news is that MG usually has fairly good results from meds and exercise changes. Not saying you'll be back to 100%. But I'm saying in a few months or half of year (of trying different meds) you're usually way better off than you are now.
You notice I didn't ask about your age or weight. Are those factors? Yes. But they're not as much a factor as they are with MS. One thing that does matter a lot is your sleeping habit. Something about the nerve receptors in your muscles picking up the impulses from your nerves is somehow greatly effected if you don't get enough rest or if you're agitated. So if you're a Tennessee Vols fan don't watch the Bama game. LOL
I’m so sorry you have MG. My grandmother had it and my mom has it. She’s 77 and got diagnosed about 2 years ago. My mom has muscle weakness and fatigue. And numerous other symptoms. I’m 49 and scared of getting it. My mom is pushing through it no matter what. My mom joined an MG group on Facebook. She got lots of info there. I hope you’ll go into remission or at least your symptoms get better.