Myasthinia Gravis (aka; MG)

09/06/21 | harpu

[tired&retired]

When someone is feeling weak, they typically turn to friends for support, not strangers.

Have a heart.

[patriotsoul]

My husband was diagnosed with MG over 10 years ago. Those early symptoms seemed like heat exhaustion or heat stroke. So draining of energy. He suffers mostly losing strength in his legs and it is very difficult climbing steps. We believe he got this as a latent development from Agent Orange exposure in Vietnam. So the VA treats him for this condition.

Lately, he is backing away from taking medication that prevents his build of antibodies. This autoimmune disorder means the antibodies attack the cells carrying signals to flex muscles. But so far it hasn’t made things worse for him. He is in his mid 70s. He does take a medicine that gives you more stamina throughout the day. He sure misses riding his motorcycle!

Prayers up for you to find the perfect prescription that keeps MG at bey.

[M. Thatcher]

I’d rather kick off people with no heart. You get my first vote.

[al baby]

Easy Karen FR is more than what you say btw you as an old time should know that

[griffin]

Nice.
People come here to ask for prayer and encouragement all the time. Has been that way since the beginning. My advice to you is stop acting like a jerk and adjust your mindset.

[griffin]

Sorry to hear you have this. Take heart. My uncle who was a backseater in a USMC F4 in Vietnam flying out of DaNang contracted brain cancer and is now down to about 5% of what he is used to doing. It could be worse and we are all getting older and weaker with age, but Im happy to hear there is a FR group for your malady! :)

Prayers up for you Brother!

[griffin]

Thank you for your service.

[griffin]

Bingo.

[griffin]

Oops....re MG group is on FB, not FR.

[NautiNurse]

Your overwhelming need to dispense medical advice without license, restriction or caveat is duly noted.

[neverevergiveup]

In general, Myasthenia Gravis is an autoimmune disorder in which a person forms antibodies against the neuromuscular junction - where the nerve endings communicate with muscle. My advice to you is to make sure you have the best doctors you can find, and get second opinions.

MG can also be associated with tumors of the thymus - and in those cases may respond to removing the thymus. MG-like syndromes can also be caused by or associated with other disease states.

There are a lot of treatment options, but just make sure they aren't missing anything, and that they are aware of all the best treatment options for you. You can do very well, but just remember that doctors aren't all interchangeable. Some are great, some aren't.

My best to you. I am sorry you're dealing with this, but you really can do very, very well - so stay optimistic and do your homework.

[Califreak]

Webheartless.

[al baby]

Bingo

[nuconvert]

You’ve been here a long time...long enough to know that there’s a forum called Bloggers & Personal. There are 34 Topics listed, only one is Politics and another is Health. Go check it out

[harpu]

"It seems all too common for people to post their personal maladies on a political discussion website. Well let me tell you about my hemorrhoids. I might sound unsympathetic but isn’t there somewhere more appropriate to tell people about your arthritis? How about Facebook. That is what Facebook is for. They will kick you off for a political opinion but not for having an illness. We are here for political opinions. You should join a support group if you need someone to talk to about your parkinsons"

Your opinion is, at best, underwhelming but like a$$holes, everybody has one and you're certainly free to share it.

[Grampa Dave]

This might be of help.

https://my.clevelandclinic.org/health/diseases/17252-myasthenia-gravis-mg#management-and-treatme

[ronniesgal]

some of us are here for just the political stuff, but this seems to be a hangout for folks like an online coffee shop.
just keep scrolling till you find something interesting.

[al baby]

I know what a dick

[NautiNurse]

Amen.

[Tell It Right]

I've known a few people with MG and a few people with MS. Plus I happened to have been part of research on both.

From the outside looking in they are very similar. One difference, though, is that MG seems to have more variety on how hard it hits someone. The good news is that MG usually has fairly good results from meds and exercise changes. Not saying you'll be back to 100%. But I'm saying in a few months or half of year (of trying different meds) you're usually way better off than you are now.

You notice I didn't ask about your age or weight. Are those factors? Yes. But they're not as much a factor as they are with MS. One thing that does matter a lot is your sleeping habit. Something about the nerve receptors in your muscles picking up the impulses from your nerves is somehow greatly effected if you don't get enough rest or if you're agitated. So if you're a Tennessee Vols fan don't watch the Bama game. LOL