Jaxson Turned 3 in April, he was born 2+ months early with his bowels outside his body and only had 8 cm of viable bowel left after initial surgery. He had one operation at about 18 months that stretched it, The bowel had grown some by that point but just not enough to stretch to avoid a future transplant... He has been in and out of the hospital his whole life now and has lived on TPN nutrients that is pumped directly into his bloodstream through a central line, which as I understand it is the primary reason they transplant the liver with the bowels. The only thing that changes is sometimes he was unhooked for a few hours during the day. He also has a feeding tube for small amounts of formula, pedialite etc. He wont take anything by mouth and the assumption is the bad taste the TPN nutrients give anything that goes into his mouth. For the past few weeks he has been in the hospital again and now latest that my Daughter is told, he may not get out and come back home again until he goes directly to have the transplant done. I think he has been added to multiple lists now that he has reached 3 years old and his situation has became more dire instead of just a single primary one in Pittsburg that specialized in infants... Anyway, just asking if you would Keep Jaxson, My daughter Katie and our Family in your prayers and also ask you to help spread the word of how some possible good can come from the tragity of a childs senseless death by allowing them to give life by donating their organs.
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To: AzNASCARfan
Will go to mass tomorrow for your grandson.
2 posted on
07/31/2016 11:44:44 PM PDT by
dp0622
(The only thing an upper crust conservative hates more than a liberal is a middle class conservative)
To: AzNASCARfan
3 posted on
07/31/2016 11:47:18 PM PDT by
BlessedBeGod
(To restore all things in Christ ~~~~ Appeasing evil is cowardice.)
To: AzNASCARfan
To: AzNASCARfan
Oh my! My prayers for the little man!
5 posted on
07/31/2016 11:58:21 PM PDT by
Dr. Bogus Pachysandra
(Don't touch that thing Don't let anybody touch that thing!I'm a Doctor and I won't touch that thing!)
To: AzNASCARfan
To: AzNASCARfan
Prayers for your grandson’s health and successful transplant surgery.
To: AzNASCARfan
11 posted on
08/01/2016 12:55:22 AM PDT by
skr
(May God confound the enemy)
To: AzNASCARfan
Our prayers are for Jaxson, his mother Katie and your entire family.
I have a friend that has a little daughter that has endured a very similar issue. She was treated at Johns Hopkins and has progressed very well and living a full life. I hope that they can locate a Jaxson’s donor soon and help your precious lil grandson.
Stay strong.
To: AzNASCARfan
My deepest and most powerful prayer was just sent.
14 posted on
08/01/2016 1:44:07 AM PDT by
Enduro Guy
(Trump/Pence 2016)
To: AzNASCARfan
I’m so sorry. You are in my prayers.
15 posted on
08/01/2016 1:44:50 AM PDT by
gattaca
(Republicans believe every day is July 4, democrats believe every day is April 15. Ronald Reagan)
To: AzNASCARfan
16 posted on
08/01/2016 1:57:58 AM PDT by
Gene Eric
(Don't be a statist!)
To: AzNASCARfan
Praying for Jaxson and entire family. We have a miracle working God. May the Divine Physician protect him while he is waiting for the transplant. Blessings for you and your family.
17 posted on
08/01/2016 2:13:29 AM PDT by
nurse-rn
To: AzNASCARfan
To: AzNASCARfan
19 posted on
08/01/2016 2:58:30 AM PDT by
FES0844
To: AzNASCARfan
My prayers for your grandson and your family.
20 posted on
08/01/2016 3:01:18 AM PDT by
HANG THE EXPENSE
(Life's tough.It's tougher when you're stupid.)
To: AzNASCARfan
Prayer up for Jaxson and family! Lord bless him, comfort his family and guide his doctors. We pray in Jesus name.
Amen
21 posted on
08/01/2016 3:12:29 AM PDT by
prisoner6
(Unmutual and Disharmonious)
To: AzNASCARfan
Adding our prayers to the many coming your way.
22 posted on
08/01/2016 3:32:02 AM PDT by
texas booster
(Join FreeRepublic's Folding@Home team (Team # 36120) Cure Alzheimer's!)
To: AzNASCARfan
Prayers up for him and his family.
23 posted on
08/01/2016 4:21:41 AM PDT by
TalBlack
(Evil doesn't have a day job....)
To: AzNASCARfan
Prayers for your grandchild and your entire family.
24 posted on
08/01/2016 4:42:45 AM PDT by
CaptainK
(...please make it stop. Shake a can of pennies at it.)
To: AzNASCARfan
Prayers for your sweet grandson.
25 posted on
08/01/2016 4:44:14 AM PDT by
MomwithHope
(Missing you /johnny (JRandomFreeper).)
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