Our close friend’s 25 year old son has this. Came out of nowhere when he was 21. So far, it has been managed. But, it appears things could get out of control quickly.
We almost lost our mother to MG in January 2007. Now she’s a spunky 93-year-old, kicking ass and taking names.
It’s important to recognize the symptoms. Three doctors failed to diagnose her correctly. One ER doctor said, “She’s just getting old”, and sent her home.
My sister, Baldwn77, went online and diagnosed her, faxed the info she learned to the hospital’s neurology department, and a doctor called her within minutes telling her to get Mom there ASAP. Not tomorrow! Today.
With IVIG and steroids she bounced back within a couple days. Seems it can be diagnosed with a certain blood test but the test isn’t something that’s typically done.
Have a friend that has MG, took forever to get it diagnosed correctly. One dockta told her it was all in her head.
My husband was diagnosed in 2008. The medication to slow the progression of this disease has had numerous negative side effects including brain synap or memory skills. We are lucky that VA can provide his healthcare. We would not be able to afford the Ned’s otherwise.