My heart goes out to you, Vipper.
I am so sorry you are afflicted with this, too.
It’s a terrible thing to live with, and many people don’t understand.
It’s “the hurt that doesn’t show”
and just because we LOOK okay, doesn’t mean that we ARE okay.
Before my diagnosis I thought I was losing my mind!
How are you feeling these days?
((((hugs))))
I have good days and I have bad days. I have gone from bedridden after the accident in 1997 to a wheelchair, a couple surgeries later to a walker. I can now walk on my own, but can’t stand or walk too much daily or both legs swell all the way up past my knees and flare. I also have it in both arms, I drop a lot of things from it. My coffee mugs are replaced alot LOL. I use voice software when it flares in the arms and hands, so I can still use the computer.
Considering I should have died in the accident according to medics and doctors, I am remarkably lucky to still enjoy life.