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To: 2ndClassCitizen; balls; Born Conservative; cva66snipe; dawn53; Deut28; Draco; dredhawk; ...

MS Ping!

Please FReepmail me if you would like to be added to, or removed from, the Multiple Sclerosis ping list...


Well the results are in from our UNOFFICIAL Tysabri poll -- THANKS TO ALL WHO RESPONDED TO A REQUEST FOR INFO FROM A FELLOW FREEPER/MS SUFFERER! - it appears noone on FR has experience with this drug treatment YET, but plenty of you have info on where all of us can read about it from those who DO use it! Instead of sending out a mass FReepmail to the MS list, I thought it might be more beneficial to post a thread with the links for Tysabri and MS information. Please see below and thanks again to all who helped with this list!


TYSABRI INFORMATION & LINKS:

ThisIsMs.com, "there is a forum specific to Tysabri there - scroll down".

Message board from Massachusetts General Hospital for MS patients "Many participants are currently using Tysabri and regularly post their experiences with the drug here."

MS World, "a special board where they share info on treatments and medications and there are several people on that board that are taking Tysabri."

NeuroTalk, several threads on Tysabri from those who take the drug.

HealthBoards.com, Tysabri info from MS patients.

Lauren: Living With MS BLOG, Tysabri Diary.

2 posted on 01/11/2007 7:25:14 AM PST by cgk (I don't see myself as a conservative. I see myself as a religious, right-wing, wacko extremist.)
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To: cgk

Thank you for your continued support of this ping list!


3 posted on 01/11/2007 8:23:38 AM PST by marvlus
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To: cgk

The BG-12 appears to be more effective than the present crab drugs.

Is that your take from the small study so far?

I realize that this is very early on.


5 posted on 01/11/2007 9:35:11 AM PST by 2ndClassCitizen
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To: cgk

Happy New Year and thank you so much for starting this informative thread, cgk.


6 posted on 01/11/2007 2:03:13 PM PST by octobersky
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To: cgk
Oh, this is a great list. I'll check the msg I got and see if it is already on your list.
8 posted on 01/11/2007 2:16:27 PM PST by hummingbird (All opinions spoken from my armchair and have no actual bearing on the war.)
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