Posted on 09/22/2016 7:38:17 AM PDT by Seizethecarp
If your doctor diagnoses you with chronic fatigue syndrome, you’ll probably get two pieces of advice: Go to a psychotherapist and get some exercise. Your doctor might tell you that either of those treatments will give you a 60 percent chance of getting better and a 20 percent chance of recovering outright. After all, that’s what researchers concluded in a 2011 study published in the prestigious medical journal the Lancet, along with later analyses.
Problem is, the study was bad science.
And we’re now finding out exactly how bad.
Under court order, the study’s authors for the first time released their raw data earlier this month. Patients and independent scientists collaborated to analyze it and posted their findings Wednesday on Virology Blog, a site hosted by Columbia microbiology professor Vincent Racaniello.
The analysis shows that if you’re already getting standard medical care, your chances of being helped by the treatments are, at best, 10 percent. And your chances of recovery? Nearly nil.
The new findings are the result of a five-year battle that chronic fatigue syndrome patients — me among them — have waged to review thWhen the Lancet study, nicknamed the PACE trial, first came out, its inflated claims made headlines around the world. “Got ME? Just get out and exercise, say scientists,” wrote the Independent, using the acronym for the international name of the disease, myalgic encephalomyelitis. (Federal agencies now call it ME/CFS.) The findings went on to influence treatment recommendations from the CDC, the Mayo Clinic, Kaiser, the British National Institute for Health and Care Excellence, and more.
But patients like me were immediately skeptical, because the results contradicted the fundamental experience of our illness: The hallmark of ME/CFS is that even mild exertion can increase all the other symptoms of the disease...
(Excerpt) Read more at statnews.com ...
From day one this was obviously bad science pushed by corporations and insurance companies hoping to get off the hook from paying long term disability liabilities, such as were due in my personal case when proved. The bill was staggering.
CFS was replaced with Fibromyalgia and Fibromyalgia has been replaced with Chronic Lyme disease.
Has anyone noticed the quality of healthcare getting worse and worse.
I sure have.
So get up off your asses
And fill all the glasses
We’re drinking this place dry.
Johnny Tarr
I’m tired of all seeing all the Chronic Fatigue Syndrome stories!
Yes...I find it best to avoid doctors...MDs...unless you break something or are nearing incapacitation
The best thing to happen for the New World Order is for gov health care. They can eliminate millions of people for the good of mother earth!
As for CFS, I await clear biological evidence it exists. Point to a microbe, an invading cell or other biological unit. To me, the very word “syndrome” connotes inexactness and lays the foundation for all sorts of manipulation that has no connection with the “syndrome,” frankly.
And the CDC refuses to acknowledge Chronic Lyme in any significant way. I know because I have it. I was, however, fortunate enough to have a good lab test. Most of the testing is inconclusive at best. It is way more prevalent than Zyka and is passed along in much the same ways.
If you give a doctor enough time with you in a hospital he will kill you most assuredly. I rank oncologists as the most prolific profiteers purveying their glorified rat poison.
So you're chronically fatigued about these stories of chronic fatigue syndrome? So you're inflicted with chronic fatigue syndrome?
Getting tired of questionable science huh.
I’ve never poisoned any glorified rats (badoom tish)
“Has anyone noticed the quality of healthcare getting worse and worse.”
For several years now my wife and I have been discussing how medical care at all levels and in all circumstances has gotten terrible. We wondered if our personal experience was wide spread.
It seems as if the medical profession, doctors and all related personnel, has stopped caring and have totally lost the art of communication. EVERYTHING seems to have turned into $ and CYA.
First off, I have never heard of “badoom tish” and secondly, if you are one or defend them, then I have no use in talking to you.
Lyme disease has big pharma $$$ component, for a vaccine (not yet ready) and influence (at minimum) of pharma-employed IDSA panel members to curtail non-traditional treatment (long term, high power antibiotics) that works.
Now, now... modern cancer treatments, rat poison and all, CAN slow down if not stop most cancers.
But again maybe the patients do not live longer; it’s only being miserable that makes it seem longer.
I watched my dad perish of multiple myeloma 3 decades ago. The doctors already warned he would succumb, that they could only slow it down for a while. And the medications did knock each flare-up down, until it finally came back with a vengeance that nothing touched. Not a pleasant fate to contemplate, but I still might choose to buy time with the medicines that be.
Ah yes, unbiased science! “Evidence-based medicine”.
You might try googling before smarting off.
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