I know what you mean. I wasted hundreds of dollars on Xango just to please my wife because someone conned her into believing it was a miricle cure.
I’ve been on 5 different medications including 2 study drugs and the only thing that has worked is a new drug called Fingolimod. Unfortunately they found a mild spot of skin cancer and dropped me from the study. Now I’ve got at least 2 years before FDA approval. Back to more drugs with more needles that don’t work.
I’ve been fortunate in that I’ve had good success with Betaseron. My neuro said she’s found that 25% of people it does no good for, 50% if helps some, and 25% are “super responders.” I must be a super responder. My MRI looks better than when I was diagnosed, and I have accummulated some disability, even while on it, but nothing drastic. I also seem to have no side effects, except for site reactions, so I’m sticking with the Beta.
Did you try Tysabri? I keep reading great things from people that are on it, although I know skin cancer also may make that drug contraindicated.